Friday, September 04, 2009

Town hall stage At the Congressman Jim Himes Healthcare Town Hall

(read more about the meeting in The Connecticut Post HERE,)

Last night, my husband, three daughters and I attended the healthcare town hall meeting in Bridgeport, CT, hosted by our Congressman Jim Himes (D.) We couldn't get a sitter, so we decided to bring the kids along rather than miss the event. After all, healthcare for children is of paramount importance (right Elmo?) I packed GFCF pretzels and a portable DVD player for the kids. Locked and loaded!

The evening began with a few words from Congressman Himes about his desire to see all Americans with healthcare coverage and his honest appraisal of where he felt some of the faults in the system are today. Aging population requiring more healthcare, higher mortality rates and worse outcomes per dollar spent than other nations, spiraling healthcare costs, and a system created after WWII where employers, who once took care of employees from cradle to grave, are the keepers of health insurance.

In today's world, a worker is likely to change jobs several times over the course of a career. The days of Dad packing his lunch every day for 45 years at the same factory or office and getting a gold watch upon retirement are long gone.

Town hall kim Then began the Q&A. Now, Bridgeport, CT is in Fairfield County, Connecticut, one of the wealthiest counties in the nation and home to Greenwich, New Canaan, Darien and other towns that conjure images of gardenparties with gin and tonics and Range Rovers in every driveway. Bridgeport ain't Darien. It's a working class city without a lot of jobs left.


The crowd was primarily in favor of President Obama and a revised healthcare plan for the nation. There were, however, lots of folks who were against a public option, felt that American health care in its current form is fine the way it is and who vocally derided every pro-change citizen who posed a question. Hey, that's democracy. We each get a voice.


Town hall mark and bella And I did too. After two hours of channeling Arnold Horshack (Ooh! Oooh! Pick me!) I got to ask a question. It went something like this.

"Hi, I'm Kim Stagliano and I live here in Fairfield County. Last year my husband lost his job. We couldn't afford COBRA. We applied for private health insurance. We were turned down because our three daughters, who are seated behind me, have autism. Will you make certain that people with autism are not turned away from healthcare? Also, we are, I believe, the only nation that allows direct to consumer ads by pharmaceutical companies. They spend billions. Could we tap into that dollar pool to help pay for healthcare? Thank you."

Congressman Himes answered that just last night he'd spent the evening with families who have children on the spectrum and he was shocked to learn about the financial devastation that never seems to end. So "yes" was his answer, he would include autism in healthcare. At that point, I kind of zoned out and didn't catch his answer on advertising dollars from pharma.

Everyone clapped, I got thousands of eyes giving me the, "Oh honey, how DO you do it?" look as I walked back to my seat, where I hugged my girls who were well behaved for over two hours, sitting quietly (ish) in their seats.

How do any of us "do it?" How do we love and adore and raise our kids with autism? I never seem to have an adequate answer for that. We just do it, don't we?

Tuesday, September 01, 2009

On Deadline!
Chapter 1 of my Kimoir, "All I Can Handle. I'm No Mother Teresa." is finito!

Sunday, August 30, 2009

Dr. Bernadine Healy on Autism and Vaccines.

Wednesday, August 26, 2009

Agent Nathan Bransford on Publishing

From Literary agency Curtis Brown's Nathan Bransford. If you write, you should add his blog to your favs. It's a must read.

How a Book Gets Published.

Tuesday, August 25, 2009


Happy 89th Birthday, Ray Bradbury!

I write because Ray Bradbury transported me across time (forward and backward) and into worlds I'd never imagined. I write because Ray Bradbury showed me the power of the printed word to soothe, enrage, engage, teach, entertain, preach, warn and more.

I first read Bradbury in Mr. Bride's English class in high school. (I recently reconnected with Mr. Bride through Linkedin and now I can call him, Jim.) Bradbury's short stories are as wonderful as his novels. The cast of characters he has created, Uncle Einar is my favorite, are unforgettable. Happy birthday, sir!
(Photo credit, Alex Collins, News Press) DOWNTOWN GLENDALE — Devoted fans, casual readers and interested passerby filled a Brand Boulevard bookshop Saturday afternoon for a chance to see author Ray Bradbury.More than 100 people crammed into the Mystery and Imagination bookshop to help Bradbury — best known for penning the 1953 science-fiction novel “Fahrenheit 451”— celebrate his 89th birthday.

Read more at the Glendale Press HERE.

Monday, August 24, 2009

Cirque du Soleil Alegria

I took mom Mom to see Alegria by Cirque du Soleil yesterday as a surprise for her October birthday. She's always wanted to see Cirque du Soleil and there were almost in my backyard this weekend. So we went!

I'll be away to speak at two conferences, The Autism Asperger's Conference in New York City on Saturday October 3 DETAILS HERE and then the National Vaccine Injury Center Conference on vaccine awareness, parent education (it's NOT anti-vaccine) and current affairs, including Gardasil and H1N1, DETAILS HERE Conference on Sunday, October 4. So, I'll miss her October 5 birthday.

This high bar act was probably our favorite. Amazing stuff!

Tuesday, August 18, 2009


Errands with the girls.

Boy, extended school year programming is over and the kids are home. All day. Every day. I'll be honest, I'd forgotten how taxing it is to do things with all three girls. I don't mean things like Climbing Mt. Everest or feeding 5,000 homeless people on a loaf of bread and 2 fish. I mean going to the Post Office. The grocery store.


If you don't have a child with autism, let me see if I can put this into words for you. I should be able to, right? I'm a writer. I'm writing a book telling you our story. And yet... I can't find a way to explain to you what it's like to try to corral all three girls and keep them safe in the parking lots and hang onto a 110 pounder and a 105 pounder and a loping 60 pounder. For those of you with boys on the spectrum, I tip my hat to you - it must be much harder.


I found myself getting "the look" at TJ Maxx when we returned a $7.50 pair of capris. Mia blasted through the line and doesn't always understand "personal space." She's 14, not 4, so most folks don't appreciate her foot clomping onto their ankle in surprise. (Tell my girl to file that under "understatement" please.)


We went to the Post Office to mail out this week's Age of Autism T-shirts (clever me, when you make a donation to http://www.ageofautism.com/ we send you a T-shirt a la public television. No amount stated - readers give what they can. We've had $1000 donations (OK, just one but man it was sweet!) and $1.00 donations, which touch me just as much. Everyone gets a shirt.)


The girls know the Post Office because they go every week with school. Then it was off to the Stop and Shop. We managed - but God forbid I needed more than a few items. It's just hard to literally phyically keep all three near me and not look like boulders rolling down a hill at you. We lurch through the store.


Of course, it's summer - so there's lots of kids with their Moms. I still marvel at two year olds talking. 4 year olds following directions. 3 year olds who know to look before crossing the street.


Got typical kids? Count your blessings, your life is easy, even when it's hard. Got kids on the spectrum? Count your blessings. Your life is rich, even when you're about to break.

Sunday, August 16, 2009


Moms Driving Drunk?

There was an article in the NY Times today "A Heroine of Cocktail Moms Sobers Up" about a blogger/writer who'd made her name as a drinking mommy - she encouraged playdates as cocktail hours and reveled in the fun. Hey, I like fun too. I enjoy a drink. Or two. I'm not casting stones. She also talked about how she recently shocked her readers by telling them her drinking frightened her, she had a problem and had stopped drinking altogether. Wow.

There's been a spate of drunk driving accidents involving drunken Moms - many with their kids in the car. Diane Shuler is the most known right now. She killed her self, her kids and three strangers driving the wrong way on the Taconic Parkway in NY.

Check out THIS about Joey Marino, a 15 year old boy who was killed this weekend by a Critical Care Nurse who was driving with her 6 year old and a cup of vodka in her hand, bottle in the car. That's Joey in the photo. He was 15. His organs have been harvested for others. And his parents will bury him. Because Caroline Goss needed a drink. And to answer her phone. While driving.

Saturday, August 15, 2009

Gianna Discovers YouTube...

Tuesday, August 11, 2009

Citizen power CDC Town Hall Meetings on H1N1 Virus and Vaccine

Thanks to Ginger Taylor of Adventures in Autism for this link to Flu Wiki. I don't know who runs the
FluWiki site, or who the author of this info, drd1106 is, but the info is worth sharing so you can attend a meeting in your area.

When it comes to vaccinating yourself or your child for H1N1 or any disease, you deserve to be informed, not scared (by either side of the debate, mind you.) From FluWiki:

This is an international website intended to remain accessible to as many people as possible. The opinions expressed here are those of the individual posters who remain solely responsible for the content of their messages.

The use of good judgement during the discussion of controversial issues would be greatly appreciated.

CDC's 10 Public Engagement Meetings Set
by: drd1106
Sat Aug 01, 2009 at 10:53:56 AM EDT

I first heard about these meetings on the NVAC conference call on Monday, but the meetings had not been set. They are now and you can get more information at
http://www.keystone.org/H1N1. YOU MUST REGISTER NOW TO ATTEND. Go to the website to register.

The meeting schedule is:

Denver, Colorado, Saturday, August 8
Lincoln, Nebraska, Saturday, August 8
Vincennes, Indiana, Saturday, August 15
Birmingham, Alabama, Saturday, August 15
Sacramento, California, Saturday, August 15
El Paso, Texas, Saturday, August 22
El Paso, Texas, sábado 22 de agosto del 2009

Additional meetings are being planned in the following cities. Please check back frequently for registration information.

Bucks County, Pennsylvania, Saturday, August 22
New York, New York, Saturday, August 22
Somerville, Massachusetts, Saturday, August 29
Spokane, Washington, Saturday, August, 29

This info was deeply buried, so I don't know how people will find out about these meetings.

Thursday, August 06, 2009



Joan Rivers Roast! Mad Men Returns!

I'm not a big TV viewer. But August has a couple of highlights. On Sunday the 9th, Comedy Central is airing the Joan Rivers Roast. I really like Joan Rivers. She's on Howard Stern pretty frequently and is just so damn funny. And honest. I love that. And when I went to her book signing last Spring, she was gracious and kind to us - Bella was having a meltdown and we were allowed to skip up the line. My agent happens to be very good friend with Ms. Rivers.




And Season 3 of Mad Men begins on the 16th. Mark and I are big Mad Men fans. Yesterday, I bought a dress that is so very Mad Men - check it out! IO have a few opportunities to wear it this summer, and it was 75% off. Kimmie doesn't buy $328 dresses... But $80 dresses? Yes indeed! Another connection? My agent also represents Bryan Batt who plays Sal Romano on Mad Men.



And I'm meeting my publisher and editor next week with my agent. I'm rather giddy about it, I admit it. I'm not above reveling in the sheer joy of selling this book. I bought a dress for that meeting too. Also on sale. Much more NY sedate - navy blue w/ prim retro cream trim. I'll wear it this Fall at a conference where I'm presenting too, most likely.





There, now you know what's new in my closet. Aren't you tickled Lilly pink? :)

Tuesday, August 04, 2009


Not an Armoire. Not a Memoir. A Kimoir!

This is a photo I had Mark take when I signed with my agent in the Winter of 2007. That's my contract.

Soon I'll have a photo of me signing the contract for my book deal for, "All I Can Handle. I'm No Mother Teresa." which will debut next Fall from Skyhorse Publishing, in NY. I'm really excited to be working with them!
It's a non-fic book about maintaining a sense of humor and surviving (drumroll please) 3 job losses, plus 5 moves in 4 years to 3 states, while raising 3 girls with autism - and ending up moderately sane and pretty darn happy.


It's not a recovery story or a "me poor lady" story. It's not even an autism story - not at it's heart. It could be about any life changing disability striking a family on top of major league money woes. For us, that means autism.


Most Americans are facing a money crunch these days - how do you maintain your pride and self worth when your "station" in life changes? What does that even mean? I'm not going to tell you what to do when your financial status changes from an Escalade to an Escort. Or when your basic assumptions about marriage and children are turned inside out over and over, year after year.
I will share how one family, this family, has faced more changes than Cher in concert and come out on top. And I hope you'll laugh a lot, cry a bit and feel confident that you too can hang tough when you close the book.


Think Erma Bombeck meets David Sedaris for voice - makes sense?


Yup, my wonderful agent Eric sold my book! Ta da!!!






Friday, July 31, 2009

The Autism Meltdown

You know how you feel when your toddler throws a tantrum" That unmotherly combination of anger, frustration, revenge, acquiescience, intolerance and a strong desire to swill down the bottle of Listerene?

Now imagine it when your toddler is 13. And you live in a house w/out AC so your windows are open. And your house is really close to the neighbors whom you've barely met. So now you can add in "embarrassed."

Add those emotions together and you have a heaping helping of G-U-I-L-T.

Then it's over - mercifully I am usually able to get it under control without losing my temper. Not always. Sometimes I snap like Joe Theismann's (thanks BT) thighbone and become psycho Mom. I scream. I hold little arms down by sides and wrap bodies in ultra squeezes. I turn my face into a twisted mask of anger and fear. I want to instill fear. Anything to make the screaming STOP. It never works.

I grab the book that's always in her hands. It's a book of emotions. Funny, huh? I open the page to angry and ask, "Are you angry?" I flip to sad, "Are you sad?" I wish for a page that reads, "Are you a crazy child put on this earth to torment me forever?"

Finally she quiets. I hit the right note. I find, "silly" or "excited" the page she perseverates on all day and all night. She grins. Tears fall from her eyes. She catches her breath. I remember to breathe.

It passes.

She sleeps.

I worry.

We both feel like this:






Just counting my blessings today.

Good news later.

Thursday, July 30, 2009

Sirius Pain: Running Up That Hill

I used to be really fit. 17% body fat is really fit in my book. I ran 5 miles several times a week. I taught aerobics 2 - 4 times a week. I lifted weights (remember Nautilus clubs?) I went out dancing even. We call that "the good old days."

Today? I'm thin. But thin is not fit.And I'm Italian, so pendulous arms are my birthright. As is a dyed black cotton candy style pile of hair on my head and a housecoat. So I'm back to exercising. What set me off? A few things. 1) I feel fat. 2) I look fattish (naked.) 3) I can not afford new clothes. 4) I need to stay stronger than my kids, which isn't easy. Mia is really strong! 5) I don't want to have to wear Teez-her t-shirts with girdles built in (see post a few days ago about that mistake.)




Kate Bush - Running up that Hill
Uploaded by scopitones. - Music videos, artist interviews, concerts and more.

I've been walking with my Sirius Stiletto on my head. I listen to Howard Stern mostly. But today he had on two porn stars and frankly, when I was eighteen I was cramming for an economics final at Tufts while they were cramming wonkaloids into their rectora. Not my cup of kaopectate, you know?

So I switched onto music. Music makes me stop walking and start running. Except my route takes me up a big old hill. I managed some of it up, some of it down.

Thank goodness Bruce came on (no coincidence, I'd switched to the Bruce channel, Sirius 10)




Mark are going to see Bruce in Mansfield, MA next month. YAY! It's our first splurge in a long time. My folks live minutes from the Comcast Center (formerly known as Great Woods) so we don't have to pay a sitter. Double Yay! And we won't have a long drive home from the City like when we go to Madison Square Garden (an hour at 1:00am is a long trip!)

I feel less fat for the moment. But Mark has literally a dozen boxes of yummy cookies in the fridge - he reps a line of gourmet cookies Too Good Gourmet and they are calling me.

Monday, July 27, 2009

I love this site. http://www.yearbookyourself.com/










T-Shirt False Advertising! Mad Men!

Good grief! Women have always tricked men into thinking they had better figures than they do. Or maybe men, who designed clothes, demanded it? Think Mad Men and the be-girdled beauties, corsets, bras filled with water, gel and such. Well, it seems undergarments have "stiff" competition from the entire wardrobe.
Imagine this - on Thursday I went to Trader Joe's to stock up on food and drink and stuff for our weekend at my Mother In Laws. We bring all food we're going to eat, as if we're camping. We take all food out when we leave (including the log for the fire) - like The Grinch. Don't ask.

There's a lovely shop next to Trader Joe's called Harper's. Check out the site, (the music sounds like a bad porn movie.) The store is mostly fur and jewelry - it took me several peeks in the window to work up my courage to enter, since I do not have a fur and jewerly budget, unless you mean Muppets and the occasional sterling earrings (my last pair was $10, puzzle pieces from NAA while at Autism One.)

Turns out, there's a clothing boutique in Harpers - and they do have lovely, wearable clothes at good prices. Fine brands, but not exclusive. And you can find things that don't make this 45 year old women feel like she's trying to look like a 20 year old, nor do they make me feel like I'm wearing Sag Harbor and Village from Vermont Country Store.

I bought a layered look T-shirt off the sidewalk sale rack. $14.99! I didn't try it on. I threw it into my duffel bag and took it to the Cape.

Friday night: MIL is taking us out to dinner at Cooke's Seafood

Yum! I grab the T-shirt and go to put it on. Struggle, squish, twist, dislocated shoulder WHAT IS WRONG WITH THIS SHIRT!!! I read the tag: Teez-Her. It's got a GIRDLE BUILT INTO IT! I swear to God - it's got a spandex center layer under the cotton - and I though it was just a layered T-shirt.

Can I tell you? Nothing says, "You're fat" more than an uncomfortable sausage casing of spandex swaddling your middle and riding up and around.

And what of poor men? They've most caught on that the boobs aren't actually the boobs they imagine under the shirt. They are usually stuffing and propping and lifting and separating and cajoled into place. Good God, you go on a date with a nice looking gal, you get her into bed and she expands like a freaking raft boat! "PFooooooottttt!

Wednesday, July 22, 2009

Congrats, Kelly on the Oprah Pick! Memoirs We Love



Welcome To Shirley, A Memoir From an Atomic Town

I posted about this wonderful book by Kelly McMasters last year. It's a memoir about life on Long Island, in a town called Shirley - located far too close to the Brookhaven Nuclear facility to avoid illness and death and yet too far from the money of Montauk to matter to the powers that be (although they are next door neighbors.) Distance is often measure in social class and money, not miles. From Kirkus Reviews:

"Powerful...debut explores the author's happy childhood next to a controversial nuclear laboratory that leaked toxic waste into a Long Island aquifer. McMasters follows up this moving material with pages that delve into case-study numbers and scientific quotes ... Sincere and expertly researched."

As I've learned from my pal John Robison's book, Look Me in the Eye, the best non-fiction reads like fiction. This book was a terrific read. Engaging, informative and with a good story at its core. I'm sure Kelly and the people of Shirley, Long Island, New York, wish this book was fiction.

The story traces Kelly's nomad-like childhood with a golf pro Dad, who found the 18th hole in Shirley, New York, where Kelly ultimately grew up. Although Shirley was supposed to be a town of flowers according to its founder, it turns out to be anything but floral when the nuclear facility nearby wreaks havoc on old, young and in between.

I see a lot of similarities to our struggles in the autism world. The government and medical establishment turning a blind eye to the obvious problems growing around them and in them(literally inside the people of Shirley, as cancer ravaged so many.)

You can buy a copy HERE. Kelly was kind enough to answer some questions for me about her book. Here's our "interview."

When did you realize you had to tell this fascinating and frightening story?

The lab is a Superfund site, which is a researcher’s dream—literally hundreds of pages of documents available to the public. And after working on the project for three years, I was finally able to get access to do some research at the lab itself. There is a “Public Documents” room in their library (which is anything but—it was impossible to get access, and then they only allowed me 3 days there, during which I needed to show my approved badge four times to get in). The reports I found there felt like pieces of a puzzle falling into place. During that meeting I met with a representative from the lab who asked why I wanted to bring up all of these bad memories again. I explained that I was interested in telling the story from Shirley’s point of view. I was interested not just in the lab itself, but in the way the relationship between the lab and Shirley has impacted the town. She replied. “But there is no relationship between Shirley and the lab.”

At that moment, I realized how important this story as, because while the lab had the luxury to decide they did not have a relationship with the town, Shirley had no choice—their relationship permeates the drinking water aquifer, the soil, and the air. The town had a relationship whether they wanted one or not, and I think this scientific arrogance and the idea that the pollution and poisons our neighbor produces and releases into the environment are only the business of that neighbor is deadly.

How long did it take you to research and write the book?

I originally started circling the issue in a series of essays during graduate school. One of my favorite professors, Richard Locke, pulled me aside and showed me that the lab was functioning as this haunted house on a hill in each piece, and he said although I was clearly afraid of it, I had to look straight at it to understand what I was writing. He was absolutely right.

Along with my own memory, hours of written and tape-recorded interviews were supplemented with other research, including newspaper articles, scientific studies, reports resulting from Freedom of Information Act requests, and hundreds of pages of documents culled from the (not so) public reading room at the Brookhaven National Laboratory. My imagined scenes of the town’s founder, Walter T. Shirley, were informed by history books and archives. Five years after my discussion with Richard Locke, the book emerged from the printer.

You’ve really brought the story to life – I’ve heard that the best non-fic reads like fiction. You’ve captured that. How did you do it?

Thanks so much—that was an important goal of mine. When my agent and I were first showing editors the proposal, they were pretty split down the middle: half wanted me to remove myself from the mix and tell the story in a purely journalistic fashion, and half wanted me to take out all of the science and medical information and focus strictly on the memoir. I thought it was important to keep that mix in there, and I was lucky to find an editor and a publishing house that believed in the hybrid as strongly as I did. So many scientific studies had already been done that didn’t tell the whole story, and since we were dealing with the Department of Defense I knew there would be no Erin Brokovitch moment of finding the incriminating evidence (or, if there was a moment like that, I’d have to go into hiding!). And while I do believe the genre of memoir can be incredibly powerful, I felt that there were so many facts and figures to marshal, that pure memoir ultimately wouldn’t be able to do the story justice.

I love literary nonfiction because it is able to take the best of both the nonfiction world—fact-based, real human drama—and the fiction world—plot, character, suspense, landscape—and apply both brushes to a single canvas. I believe it is the most exciting genre to work in right now. Literary nonfiction has that frontier feeling of anything-is-possible because the borders are so malleable and flexible. My next book is absolutely going to continue to push the hybrid form.

Do you think because Shirley was not as affluent as other areas that your concerns were ignored?

Absolutely. And almost every national laboratory around the country has a town like Shirley nestled up next to it—a blue-collar dumping ground. The most frustrating message I kept getting was that Shirley didn’t matter—that our people were disposable. You can imagine how painful it is to be told that your family and friends, the people you love most, are disposable and that their lives are not worth as much as the Nobel prize or results from an experiment.

More damaging, however, is the fact that after decades of being sent this message, it was internalized. The people in town really began to believe that they were disposable and that somehow this was just par for the course, or what they deserved. That’s the saddest and most damaging part, I think.

How do you manage the anger you must feel at that folks who refused to listen for so long?

Wow. That is a really difficult question to answer. I think writing this, of course, really allowed me a kind of release. To be honest, I cried through so much of the writing. And I was mostly crying over things that happened twenty years ago. It is difficult to know where to put that kind of anger because it is displaced—people are already sick or dead, and there is no way to change that. And since cancer often takes 20 years to show up, there is no way to retroactively protect my friends, family, or even myself right now.

Most of my anger is wrapped up in this powerlessness. My mother’s character in the book acts as a kind of Cassandra—she sees where things are headed and tries to warn people, but no one listens. I think anyone who deals with environmental health issues must feel this way. But it is a faceless anger, which is the worst kind—since there is no one person to take it out on, it can really engulf your world, and I’ve also seen this kind of anger turn inward and engulf the person, which helps no one. I think the most constructive thing you can do is simply to try to accomplish one thing each day. Tell one person or write one letter or learn one more thing to strengthen your case so the next letter you write might be the one that shines the light in that deep, dark basement where no one wants to look. Translate that anger into something useful.

Thank you, Kelly!


Tuesday, July 21, 2009


Elderly Drivers

This topic came up when my folks were visiting. My Dad is 86. He was complaining that the headrests in his car are in his way. I can understand that - to a point. My headrest is in my way too. I have to move my head left or right in order to see when I back out of a spot. My Dad felt headrests should be removed. I say they are a safety precaution to help prevent whiplash. We agreed to disagree.

Massachusetts recently had a spate of elderly drivers injuring or killing people. Surely teen drivers die at a far more alarming rate. Older drivers tend to be safer drivers.

But is there an age at which by default, a person should turn in his/her license or the state should start road testing?

Today I followed a large Caddy into post office parking lot. Driven by another headless person (older, too short to be above the headrest.) He blew through not ONE but TWO stop signs in the parking lot and had to conduct a 43 point turn to get into a parking space. Should he be driving?

In a weird twist, my Dad's car died the other day. It just up and died. Fortunately he recognized the noise as a death rattle and came home. So he's safe. Phew! But now he has no car. And I'm sure that's big loss to him. Getting older is no picnic.

Saturday, July 18, 2009

ADAM_One-Sheet-1
Fox Searchlight Films Love Story: ADAM Features Title Character w/ Aspergers. (Look how cute he is.)


ADAM, a romance featuring a title character with Asperger's Syndrome, opens July 29, 2009, but I have your ticket to an advance screening in select cities. CLICK HERE to find a screening.

Plus, Fox Searchlight Films has given Age of Autism a signed movie poster - leave your name in the comments to enter. Click HERE to enter!

Click HERE to visit the official Fox Searchlight site for Adam.

Romance can be risky, perplexing and filled with the perils of miscommunication - and that's if you aren't ADAM, for whom life itself is this way. In this heartfelt romantic comedy, Hugh Dancy (THE JANE AUSTEN BOOK CLUB, CONFESSIONS OF A SHOPAHOLIC) stars as Adam, a handsome but intriguing young man who has all his life led a sheltered existence - until he meets his new neighbor, Beth (Rose Byrne, "Damages," 28 WEEKS LATER, KNOWING), a beautiful, cosmopolitan young woman who pulls him into the outside world, with funny, touching and entirely unexpected results. Their implausible and enigmatic relationship reveals just how far two people from different realities can stretch in search of an extraordinary connection.


Directed by: Max Mayer Written by: Max Mayer Produced by: Leslie Urdang, Miranda De Pencier and Dean Vanech Co-produced by: Gary Guidice, Geoff Linville Executive produced by: Dan Revers and Christina Weiss Lurie Cast: Hugh Dancy, Rose Byrne, Peter Gallagher, Amy Irving and Frankie Faison.

Thursday, July 16, 2009

Autism Excluded from Healthcare

Click HERE to read my latest HuffPo, "Nancy Pelosi's Sarah Palin Moment" on the failure of HR 3200 healthcare to include autism.

Half Crazy Mother Attends Half Blood Prince

That's right! I am shirking today. Shirk shirk shirk shirk shirk. I'm going to see Harry Potter and the Half Blood Prince's 11:00am showing at the Bow Tie (my my) theatre.

I haven't seen an HP in the theatre in years. I used to take my nephew - we saw the first and second one I think. That was a long time ago. Since then, the movies come out and I just can't seem to get away for the 3 hours. I have the DVDs but it's not the same.

The kids are in ESY and camp and Mark is in Trenton on business (wonder if he'll run into Stephanie Plum?) and Kim is going to play hookey and go to the movies!

Wednesday, July 15, 2009

Friday, July 10, 2009

Gov. Jay Nixon of Missouri: My New Hero

Watch this six minute video on Governor Jay Nixon of Missouri present angrily and eloquently on the failure of the autism insurance bill passage in his state. Paraphrasing, "We have coverage for Alzheimers..." "The industry has survived other mandates. Mammograms, prostate screening." If the video doesn't download on AoA for you, click HERE to go to You Tube.


Thank you, Governor. And thanks for keeping the insurance industry and weak politician's feet to the fire. Thank him yourself HERE.




Wednesday, July 08, 2009


Do You Read Janet Evanovich?


Which character is this? She's perfect isn't she? I can almost smell the donuts and Cluck in a Bucket chicken that's just out of the shot. And you know she's wearing Via Spigas. This must have been taken when she was engaged to Tank - that's purported to be a wedding dress!

I just downloaded Finger Lickin' Fifteen onto my Kindle. This house has almost no wireless ability at all - and it's funking out my Kindle. It took forever to download because I kept losing my connection. More charm in the neighborhood...



Hiding. Writing. Must.

Saturday, July 04, 2009

This sums me up today.


Is it possible to hate a future adult?

Maybe "hate" is a strong word.

Tonight we were at the ice cream parlor (enzymes in, girls? Coconut ice cream for Bella) and I saw a girl no older than 6 and immediately disliked her. Not her actually, I disliked her adult self.

I'm telling you, she had a look that told me, "As an adult, little girl, you will be an asshole and I will not like you." She did. I swear. I don't usually sum up the entire future of tots at first glance. Really. And it's not as if I dislike ALL adult women with pool slide noses, watery blue eyes and razor straight chin length straw colored bobbed hair and a smattering of freckles.

Somehow, this child telegraphed, "One day I will live in NewDarienStamWich and drive a H23 which will get .02 miles per gallon and I will not give a shit and I will have 3 kids named Madison, Addison and young Ladison IV named after his father Ladison Freemont Saltonpratt the III each of whom will attend Montessouri school and excel in squash, Spanish and who will think that Consuela, our maid, is a nicer person than I am."


Is today over yet?


Friday, July 03, 2009


Swabbing (bleaching) the Decks

Good Lord. So we rented this house and have been here for a couple of weeks. I mopped the hardwood floors, polished them and vacuumed all the carpets before we moved in. The house was surface clean.

But now that I'm living in it, it has dawned on me that the previous tenant was a P-I-G pig. I've heard she was a nurse. For the love of God I hope she works in a veterinary clinic and not a hospital.

The curtain over the kitchen sink was black on the back with cooking residue. And the light over the sink? Hey! It's actually white and not brown! Some people just never deep clean. The ceiling fan in the kids room qualifies for an experiment at CDC.

When I left the "green house" in June (damn I miss that sweet little house) you could eat off the floors. And the toilets for that matter. I'd have been horrified to leave it dirty. I put a CAKE in the freezer for the landlord who was moving back in for Criminy sakes.

I'm bleaching the expansive tile floor in the kitchen, eating area and entry all off the garage. Can you hear the Doobie Brothers in the background? "Oh black water, keep on mopping..." The girls' white socks are filthy at the end of the day. I bought a steamer from Ebay - but need the pads for it.

The bathrooms were horrendous too. Not on the surface - so the LL probably didn't notice. They happen to be lovely people and they take outstanding care of this house, inside and out. No problems there at all. They're great. But the tub and shower floor? UGH. Twenty three Mr. Clean sponges later I'd scraped off the yuckiness.

And our movers brought FOUR COCKROACHES INTO THE HOUSE!

Happy Independence Day. (Insert eye roll here.)

Thursday, July 02, 2009


Seeking an Agent this Fall?

Found this on the Backspace message board. Backspace is an amazing writers' org. If you're serious about writing and getting published, you should check them out. I met my agent at their agent/author conference. If you bid, good luck!

Ms. Irene Goodman, president of the Irene Goodman Literary Agency (HERE), will auction a single spaced, half-page critique for 25 partial manuscripts (approximately 50 pages and a synopsis).

This will be done on Ebay from Dec. 1 to Dec. 15th. The 25 highest bidders will win. The critiques will all be done personally by Ms. Goodman. They will not be farmed out. Ms. Goodman will email the completed critiques to each of the authors within one month after the auction closing date.

All proceeds will go directly into one of two foundations: the Foundation Fighting Blindness and the Deafness Research Foundation. Both foundations are well established, and the research in each area is incredibly promising. If the necessary funds are obtained to continue research, effective treatments can be expected in the next several years.

Ms. Goodman will consider any commercial fiction--thrillers, romance, urban fantasy, mystery, women's fiction, and historical fiction--and will also look at commercial non-fiction, prescriptive or narrative. For the purposes of this auction, literary fiction and weighty non-fiction submissions will not be accepted.

All starting bids must be $100 or more. Ms. Goodman has been a leading member of the publishing community for over 30 years. Her clients are regulars on the New York Times, USA Today, Walden, Publishers Weekly, and Bookscan bestseller lists. Together with her dynamic staff, her agency represents over 80 authors. Deals range from five to seven figures. Ms. Goodman has led many a career to bestsellerdom and has an intimate knowledge of the art and craft of the commercial novel.

Tuesday, June 30, 2009

Mind Scrambler from Chris Grabenstein.

Hi, everyone. We got back from Cleveland on Sunday. Four days to visit a dear friend (who has ALS/heavy metal poisoning) and to take the girls to The Cleveland Clinic to see Dr. Marvin Natowicz, neurometabolic geneticist brilliant kind doctor.


Last week Chris Grabenstein debuted his latest in the fabulous John Ceepak mystery series. These mysteries take place at the Jersey Shore and are great reads. Ceepak is a "Sea Isle" cop, an Iraq war vet, honest to a fault and has a partner named Danny Boyle who's learning the ropes. Chris and I share an agent. Chris keeps him a bit busier than I do, but I hope that changes soon. :) Chris also wrote an amazing middle grade that appeals to ALL ages called "The Crossroads." Awesome ghost story that takes place in Connecticut.

Check out Chris's site HERE.

Trust none of what you hearAnd less of what you seeThis is what will be, this is what will be. —Bruce Springsteen, "Magic" Copyright, Bruce Springsteen, 2007

ohn Ceepak and Danny Boyle are making the rounds in Atlantic City (interviewing witnesses for the one crime left unsolved at the end of HELL HOLE) when Danny runs into his former crush, Katie. She's working as a nanny for the children of a magician named Richard Rock, the headliner at one of the big casinos. When Katie is found strangled to death backstage, it is up to Ceepak and Danny to find out who killed her. Their lives and the lives of others depend on it.

Wednesday, June 24, 2009

MB12 revitaPops Are Here!RevitaPops

You've got to check out the revitaPop, methylcobalamin (MB12) in a tasty lollipop.

I tried my first revitaPop at Autism One last month (HERE.) Holy cow! Within seconds I felt a distinct "ping" in my brain and I became more alert, bubbly and energetic. Trust me, if I hadn't felt anything I'd have smiled and walked away from the booth to go find coffee.

Revitapop2 Click HERE to view a quick video of testimonials from Autism One. You'll see familiar faces, including Kimberly Linderman, yours truly and our Contributing Editor Abdulkadir Khalif.

The revitaPop tastes great (I tried Pomegranate) is gluten and casein free and uses no artificial colors or flavors. I was really happy to learn from Dave Dobkin (that's he in the photo), that the folks at revitaPop employ people with developmental disabilities to sort, pack and ship the product. And they support Generation Rescue and the new Rescue Family grant program. revitaPop was created by Stan Kurtz who also invented the MB12 Nasal Spray and is President of Generation Rescue .

There is a patent pending on revitaPOP's novel administration of MB12. Their first shipment sold out in days. Their next shipment arrives this week.

Go to http://www.revitapop.com/ to learn more.

Thursday, June 18, 2009

Swedish, English, who cares?
We're being deluged with rain.

Tuesday, June 16, 2009

What Makes Us Fight? (In a good way.)

I often wonder why some of us fight/challenge/take on/refuse to roll over and play dead and others accept, or at least pretend to accept, choosing not to fight much at all. Not just autism. Cancer, a bum hand in life, job loss, divorce, MS, ALS, you name it.

I see a lot of beautiful, strong women facing cancer on FaceBook and it blogs. I worry so much for my kids. But I am healthy. And grateful.

This scene from Sex and the City is one of my favorites. It's for fighters everywhere.

Monday, June 15, 2009


Another rainy day.... UGH! What a rotten Spring/Summer so far. It's raining and 57 degrees this morning.

Saturday, June 13, 2009


We made it!



We moved out of the old house and into the new house. Phew! Why is it I scrub my way out of a house but no one scrubs my way IN to the new house. We have those giant pock marked tiles throughout the kitchen and eating area - boy are they hard to clean! My pal Maureen suggested an EnviroSteamer by Eureka - a discontinued item. It's much bigger than the Shark steamer. I found one on ebay! (Thanks, Maureen!) Only $17 shipped!! Should do trick.

The house is beautiful - it's just lovely. The owners painted the exterior and the kitchen is fabulous. (Note: test kitchen appliances, stainless steel is sometimes PLASTIC and your fridge magnets don't stick. Waaaah!)

We have a guest room again. Come see us!

Wednesday, June 10, 2009


So Tired!

Mark and I have moved umpteen loads of stuff into the new house. Six loads just today! Man, I'm tired. Tomorrow the movers arrive. I do wish our grant had come through - we're drowning in moving expenses, even as we try to do as much work ourselves.
Remember that flood we had last December? It took all our moving boxes! So we're using four big plastic tubs. Pray for us.

Sunday, June 07, 2009

Moving on Up?

We're moving across town this week. The house is a very nice Dutch colonial in a lovely neighborhood. It's near Mia and Gianna's school. The owners are a fine couple - who take excellent care of the house. They have a 20 year old daughter who might be available to babysit. We've met our neighbors and they seem terrific. We're very lucky to have found this house. I'm trying to fire myself up for moving. I love the house we're in. It has simply stolen my heart. Isn't that silly? I love the layout, the kitchen, the office space for Mark and the ce-ment pond. Oh my we'll miss the ce-ment pond. But, we're onto something new. We've done it before. We can do it again.


Friday, June 05, 2009


High School Graduation. 1981. I was 17.

Thanks to Judi Q.G. for sending me the photo. Judi, Amy and I were roommates sophomore year. Then I moved into a "trouble triple" for two years, down the hall. Lordy be we had some fun. Think college but you're in high school. And yet, we were never untoward.

We were respectful of our own bodies and our friends lives. We were cautious to the extent teens can be cautious. We studied hard, followed most of the rules and went to good colleges, from which we graduated in four years, not five or six. We had real boyfriends, and yes, some of us were sexually active. But we loved these boys and were not promiscious. There was no such thing as "friends with benefits."
We respected our parents and followed the rules of our homes. We used payphones to make calls and made collect calls to Mom and Dad. We typed our papers on onion skin. White out was our friend.

Some of us came from wealthy families. Some did not. My folks were comfortable but by no means wealthy.
If you have teens, I hope they can have all of the advantages my parents gave me and forge friendships that last a lifetime, like I have.

Wednesday, June 03, 2009

High School Graduation, June 3rd 1981 This is my graduation from high school. That's me with my roommates, Judi and Amy. Man did we have fun! The girls wore long white gowns and the boys white duck pants, navy blazers and their school rep ties. Tres preppy! Well, it was a New England boarding school.



Saturday, May 30, 2009


From the Autism One Dinner Last Weekend

The theme of the dinner was, "The gloves are off" to celebrate the power of the Moms (and Dads) who fight for treatment, care, programs, services for people with autism all over the world. A group of us presented items at the auction. This is me having lots of fun with the crowd. (Thank you to my Dad who was my orthodontist. I do like my teeth -although they are rather Osmond'ish.) Instead of wearing fancy debutant gloves, I wore my Playtex cleaning gloves.

Wednesday, May 27, 2009

Conservative Radio Shock Jock Changes Tune after SIX seconds of Waterboarding.

Tuesday, May 26, 2009


I'm a Busy Bee!

HuffPo on Karl Taro Greenfeld's Boy Alone Boy Alone is Karl's memoir about growing up with an autistic brother, Noah. Noah's Dad, Josh Greenfeld, wrote three books about Noah in the 1970s and 80s. Please click over to HuffPo if you have time and run a comment, won't you? I need the buzzzzzzzz. :)
Kim Stagliano on Autism One Radio "Linderman Live!"

You can listen to a one hour interview with me and Parent Warriors Harry and Gina Tembenis, of Worcester, Massachusetts. Harry and Gina were recovering their son Elias - when he suddenly passed away following a seizure. They'll talk about the Elias Tembenis Walk that raised over $40,000 with a walk from coast to coast and how they used hippotherapy with Elias. There's even a little time spent on Dr. Offit - who is NOT Curt Linderman's favorite person.... (File under understatement!)

http://www.autismone.org/radio/default.cfm?archive=6801&bg=&FromA1
View Autism Recovery

I had a wonderful time at http://www.autismone.org/ in Chicago. Mark took great care of his girls for the weekend.

On Saturday night at the dinner, young Sam Debold turned on the charm (and every tear duct in the room) with his muscial performance. Here is Dr. Andrew Wakefield's introduction of Sam. You can see Sam's complete performance, including this intro, at the link to A of A below. Sam's Mom Vicky wrote about Sam's ongoing recovery. Hope - we all deserve hope.

Ladies and Gentlemen, I have just a very, very small role tonight and that is to introduce someone that I first met some years ago in Detroit. He’s a Red Wings fan. And a when I met Sam Debold through my great friend Vicky Debold, his mother, Sam was profoundly autistic. And back then when I knew very little about this disease, I wondered quite what the prospects for Sam were. And I’ve been following his progress over the years and Sam has been doing extremely well.

And then I received the other day a YouTube video of Sam which his mother instructed me to watch of Sam playing Hotel California - he’d only just heard it, I believe, for the first time that day and it was one of the most extraordinary things I’d ever seen. And so it is a great great privilege for me and without any further adieu for me to introduce Sam Debold.

I should just say that Sam is dressed in a way that makes me look under-dressed. I forgive him for that. Sam, over to you man.







http://www.youtube.com/watch?v=tDeEtGNNexg&feature=channel_page/

How Long Must We Sing This Song?
Vicky Debold, PhD, RN

In 1983, the band U2 released an album titled War which includes Sunday Bloody Sunday, a song widely considered to be one of the most powerful political protest songs of all times. For anyone who doesn’t know the song’s history, it captures the anguish of an observer who witnessed Northern Irish civil rights protesters being fired upon by the British army (lyrics below).

For those of us within the vaccine-injured communities who are fighting on behalf of our children for the basic human right to make voluntary, informed vaccination decisions that are based on sound science rather than ideology, it is a battle. And it is personal. Like the victims of the civil war described in Sunday Bloody Sunday, many lives have been lost, our families torn apart, and everyday there’s unbelievable news where indeed, “fact” is fiction and TV becomes reality.

For anyone fortunate enough to be able to attend this weekend’s outstanding Autism One conference and Saturday night’s dinner, they heard my 11 year-old son, Sam, sing Sunday Bloody Sunday.

Sam’s story is a common one these days. He was a healthy, happy, normally developing baby until 15 months-of-age when he experienced a significant physical and social regression after receiving seven vaccines during his well-baby visit. The following day, he was unable to stand up in his crib, seemed “dazed”, was ataxic and lost interest in walking which lasted for two months, developed chronic diarrhea and progressively lost his ability to speak and all interest in socializing with his family.

Read the rest of the post and see two more videos HERE.

Wednesday, May 20, 2009


How do we reconcile this?

How do we who are Catholic reconcile this monstrous. institutionally accepted behavior by the Church? Is it forgiveable? Do we ignore it and just go about our business? I sit in Church and listen to the priests talk about the evil of gay marriage and how it will undermine the sanctity of Catholic marriage. And about abortion - over and over and over. Surely no one wants to see abortions happen. But then how do you preach against birth control?

DUBLIN – A commission report into the abuse of thousands of Irish children in Roman Catholic institutions is published Wednesday after a nine-year investigation repeatedly delayed by church lawsuits, missing documentation and alleged government obstruction.

The Commission to Inquire Into Child Abuse will release a 2,575-page report in an attempt at a comprehensive portrait of sexual, physical and emotional damage inflicted on children consigned to the country's defunct network of reformatories, workhouses, orphanages and other church-run institutions from the 1930s to 1990s.

Most of the children were ordered into church care because of school truancy, petty crimes or because they were the offspring of unwed mothers. Many faced regimes of terror involving ritual beatings and intimidation. But until the investigation came along, thousands of survivors said they had nowhere safe to tell their stories — because swathes of Irish Catholic society sought to label them liars.

Some of those victims say they feel hopeful now that vindication might be at hand.

Christine Buckley, who was one of the first to break silence in the early 1990s on the church's institutional abuse of children, said the report's verdict on church and government failings should demonstrate "whether the journey for justice, undertaken by so many and for so long, has at last been successful."

She, like many campaigners, said it was critical that the truth of their brutal childhoods be placed indisputably on the public record after decades of dispute from the religious orders — principally the Christian Brothers and Sisters of Mercy nuns — that ran Ireland's 19th century-era industrial schools and other state-funded refuges for Ireland's most vulnerable children. Most closed in the 1970s.

Typically, children at such facilities stopped receiving any formal education by age 12. But they kept generating income for the religious orders through their teens with their mandatory, unpaid labor on farms, in laundries and as domestic cleaners.

In Buckley's case, she was consigned to a Dublin orphanage in the late 1950s because she was the child of a single Irish mother and Nigerian father; children born out of wedlock typically were placed for adoption or into state care.

All the girls at her former Sisters of Mercy-run home, Goldenbridge, were expected to manufacture 60 rosary necklaces a day or suffer humiliation or beatings.

Officials of the Sisters of Mercy, Christian Brothers and more than a dozen other orders implicated in sexual, physical and emotional abuse of children all testified to the commission. None was willing to comment this week in advance of the report's unveiling.

During the commission's investigations, oral evidence was collected from more than 1,000 people chiefly in their 50s to 70s — several hundred of whom traveled back to Ireland from as far away as the United States and Australia — who described childhoods of terror and intimidation.

The Christian Brothers delayed the investigation for more than a year with a lawsuit that successfully defended their members' right to anonymity in all references in the report — even in cases where individual Christian Brothers have already been convicted of sexual and physical attacks on children.

Read the rest (if you can stand it)
HERE.

Friday, May 15, 2009


Boy Alone A Brother's Memoir by Karl Taro Greenfeld

Karl's father wrote three books about Noah in the 1970s -80s. Noah is profoundly autistic. I had the pleasure of sitting at The Algonquin hotel with Karl and discussing writing, publishing, autism from the perspective of a brother versus a mother and delving into the questions of treatment, cure, life care. I am honored that Karl found my thoughts interesting enough to include me in his acknowledgement.

Read this book. It's not an "HEA" story. But guess what. Autism is not a "happily ever after" diagnosis. This book presages the world we're headed into as thousands upon thousands of darling children grow into men and women who will need someplace to live. And people to tend to their ever present needs. For those of you parents with a child with autism and NT kids, you might be shocked. I'm sure Karl will welcome your thoughts. Here's an email from him.

My new book, Boy Alone: A Brother's Memoir, about my profoundly autistic younger brother Noah, is out now, available at the usual places. If they say they don't have it, they're lying—or possibly hoarding because they know it is likely to be a collectible—so keep insisting until they either sell you a copy or forcibly remove you from the premises. And don't assume it's only available at bookstores, why not try to buy at your local Wireless Warehouse or MacDonalds or gas station with the same persistance you would show at a bookseller. Let's let all merchants know they should be carrying this fine, fine book.

TIME excerpted it today
HERE.

GQ excerpted it last month HERE.

I'm doing a reading and talk/back at the Tribeca Barnes & Noble on May 27th, an event at the Aspen Instittue in Washington DC on June 8th, and a tour of the westcoast the second week of June.

NPR's All Things Considered will feature the book next week.

My website is in beta form at
www.karltarogreenfeld.com

Thanks-karl taro greenfeld




Friday Music!