(Added, 9:20pm) I am reading the comments that keep coming into HuffPo and I am completely blown away. So many parents, so many stories, so many people fighting for their kids. Take a moment to read the comments - 39 and counting.
The Intensity of the Huffington Post Fearless Voices Comment Trail
Last week I ran a post on Huffington Post called "The Crappy Life of the Autism Mom."
I knew the post would generate comments. In fact, I sent an engraved invitation to controversy and she (he?) came a knocking. I didn't anticipate the deep chord I struck in so many parents. Here are some of the comments -- feel free to go over to the post to read the others.
To the parents who feel like I'm helping them in some small way? Thanks. To the parents who really dislike my voice, my writing, my approach? I'm happy to listen to you too. They don't call it FEARLESS VOICES for nothing.
This post brought tears to my eyes! I am the mother of 3 autistic boys and this post amazingly hit home. I can relate to what she says. Another cliche that always seems to rattle me is when people say.."God will only give what you can handle." I'm not angry with God but do people actually think that statement makes my life any easier?
From one autism mom to another, thank you for making me laugh today. I hope it helps to know that others understand where you're coming from all too well. Luckily I'm having a day where I can see that my son is a veritable pastiche of Bertie Bott's Beans -- both raspberry and booger. And that's ok for today.
You have very adeptly described a situation very to similar to the one at our home and at the home of my twin autistic nieces. In addition to the crapisodes, we have screaming fits, chronic pain, insomnia binges, and thrush, among many other "neurodiverse" characteristics.Thanks so much for telling the truth so bravely and boldly!
Yes, Kim, let's expand our vocabularies, starting with "neurodiverse". It has nothing to do with not helping our kids, or preventing behavioral change. Your characterization is crappier than the baseboards in your bathroom.Now let's talk about "recovery". Autism is a lifelong, neurological condition, but that doesn't mean it's degenerative. Your daughters will get better through education, parental love and acceptance, and the normal maturation process. Chasing magical cures is a distraction, and can actually interfere with real recovery. Our kids need rational, thinking parents, not shrill dingbats. You're better than that.
I'm sorry you choose to highlight the deficiencies in your child for the world to see. I can't help but think that you are a bit self centered. When was the last time you tried to engage an autistic adult in conversation?
I responded to that last comment by telling the person that I have recently made friends with an autistic adult in my town. She works in my grocery store and sings in my church. She's a delightful young woman who gives me tremendous hope for my own girls.
As always, I'm thankful to the folks at HuffPo for allowing me to post on their site.