

CDC Did Not Properly Screen Medical Experts for Financial Conflict of Interest on Vaccine Safety
If there's one story the NYT has avoided, it's vaccine safety. No matter how many drugs they'd "out" for being dangerous, needing recalls, or pharma ghost written studies or their myriad other hard hitting journalism about pharma, vaccines were always the Virgins in Church, piously pristine. Maybe not.
Read the full article by Gardiner Harris in the New York Times, HERE.
WASHINGTON — A new report finds that the Centers for Disease Control and Prevention did a poor job of screening medical experts for financial conflicts when it hired them to advise the agency on vaccine safety, officials said Thursday.
Most of the experts who served on advisory panels in 2007 to evaluate vaccines for flu and cervical cancer had potential conflicts that were never resolved, the report said. Some were legally barred from considering the issues but did so anyway.
In the report, expected to be released Friday, Daniel R. Levinson, the inspector general of the Department of Health and Human Services, found that the centers failed nearly every time to ensure that the experts adequately filled out forms confirming they were not being paid by companies with an interest in their decisions...
By Kim Stagliano
Your pretty red house is on fire. You're on the second floor with your kids. The stairs are gone. You call the fire department. They tell you they don't go to red houses. They assure you that your house is not on fire, it's just your imagination. They hang up on you. Then they disconnect your phone lines. Smoke is choking your children, flames licking their feet. Do you throw them out the 2nd story window or let them burn to death having been told your house is not on fire? You may choose to let your kids burn to death. Good on ya. Get out of my way, though. I'm throwing my girls to safety.
That's my response to the Chicago Tribune accusing us of performing "uncontrolled studies" on our kids. (Our medical doctors are thorough and safe, by the way.) The AAP and mainstream medical doctors have abandoned our sick kids. They offer us nothing. Do they really expect us to let our children suffer? And why does it bother journalists like Trine Tsouderos and Pat Callahan that some of us are improving our children's lives?
Who on earth would tear down progress for so many kids and moreover, why?
Kim Stagliano is Managing Editor for Age of Autism.
I deleted the comment thread - I don't need any wolves in sheep's clothing co-opting my posts for their own gain. Nor do I need anon commenters bashing my readers.
Chicago Trib Wants Autistic Kids to Remain Sick
From www.ageofautism.com: The Chicago Tribune is running another series of articles stating that "risky" treatments are of little use to children/people with autism (HERE). (Meanwhile, the American Academy of Pediatrics, in their backyard, will tell parents to use powerful psychiatric drugs with little to know knowledge of how they work or their long term effects on kids. Talk about risky.) We'll be sharing more info with you about the interview process these journalists followed and what did and did not make their final article. In the meantime, we invite you to send Patrician Callahan (pcallahan@tribune.com), Trine Tsouderos (ttsouderos@tribune.com) and Editor Gerould Kern (gkern@tribune.com) a polite email sharing how treatments have improved your child's life. When you send you email, include a copy in our comments, please.
We beg to differ with the slant the Tribune is taking. Children can make tremendous progress and we will share stories with you from our recovery category. Start with this little girl, who is using speech for the first time. If you ever figure out why people with autism are NOT supposed to see improvement or, God forbid, recover, let us know. The anger, skepticism and outright denial of medical care for autism is stunning.
From August, 12, 2009 (HERE) : Yesterday, we told you about the 2009 National Autism Association Conference in Florida this November. The video below is a gorgeous advertisement for why you should attend the conference. This beautiful, nine year old child was non-verbal until just weeks ago.
Her Mom has attended every National Autism Association Conference. Because this child is Aly Fournier, daughter of NAA President Wendy Fournier. The video is called "Aly's Letters." Just see if you can stop smiling while you watch this.
From Wendy on 7/24/09: Friends, I have a miracle to share with you! It's all about Hopeism. My daughter Aly is 9 years old and severely injured by her vaccines - diagnosis: Autism. She has never had functional language. I have a recording on my computer of her saying Mama when she was about 11 months old. I haven't heard it since. The last 7 years have been more difficult than I can say, but many of you don't need an explanation, you're living it.
When Aly was diagnosed, I hit the ground running. I soaked up everything I could about autism, vaccine injury, therapies, biomedical treatments, attended conferences, asked a million questions, talked to doctors and other parents, spent sleepness nights searching Pubmed. I was absolutely convinced that she would be perfectly fine and recovered by First Grade.
First grade came and went, she'll be a 4th grader this fall. She's been making slow progress over the last couple of years, but painfully slow and no big "Wows". She's finally potty trained which I am extremely grateful for! She's sleeping through the night, with rare exceptions. She's using picture exchange to make very basic requests, but is still unable to tell us how she feels, or if something hurts.
This past winter was so hard. I looked at her one day and really saw her. It hit me like a truck how sick she is, and I started grieving for everything that's been stolen from her and our family. The holidays, dreaded birthdays that simply mark the passage of another year without recovery, the joy of having friends, going to the movies, being able to play outside without the worry of her running into the street, and family vacations? Not even a possibility.
Enough of that, I'll get to the good stuff. This past week, my non-verbal little girl started SAYING letters. Looking at them, pointing to them, and getting the sounds to come out of her mouth. She's never been able to do anything like this before. It's AMAZING! I've been hesitant to even say anything about it because I'm so terrified that it will go away. But I need to share this with all of you who have been fighting so long. When Aly's 9th birthday came and went, I was beginning to wonder if she would ever be able to find her voice. And now she has! Hope has been dumped all over me and I'm filled with excitement about what's to come!
Update – 2 weeks later: Aly is now verbally labeling all of her letters, numbers to 10, and naming about 35 objects and people - including Mommy! She has also started using her voice to request her favorite things – showers and cookies!
The treatment category is sponsored by Lee Silsby, the leader in quality compounded medications for autism.
New Book By Brother of Boy with Autism: Saving Deets!
Zack Gonzalez is a 16 year old whose brother Ethan, aka "Deets" has autism. Countless siblings are dealing with the issues of having a brother or sister with autism. Few are able convey the gravity of that experience, their hope for some form of recovery, engage in charitable work and offer advice to families the way Zack has done so well in Saving Deets.
We have a signed copy for one lucky Age of Autism reader. Leave a comment HERE to enter. I hope you go to Zack's site HERE and order a copy, to support him.
From his site: Saving Deets! is Zack's first book. It is his family's journey with his autistic brother, Ethan, aka Deets, told through his eyes. The book covers, acceptance, recovery and making a difference
The book is filled with heart-filled stories and pictures from Zack & other hand-picked families. It is bold and controversial, yet soft and loving. It also includes helpful tips and information including different charts.
The book is $18.50 but exclusively sold for only $17.00 when purchased from www.zackgonzalez.com & you get to choose which organization you would like to donate a potion of the proceeds to. The book can also be purchased at: Trafford Bookstore
& will soon be available World-Wide in all bookstores this November!
Win Dan Burns's Saving Ben: A Father's Story of Autism
We're giving away TWO free copies of Dan Burns's, Saving Ben: A Father's Story of Autism. Click HERE to enter at Age of Autism. (If you've any trouble commenting, you can enter by sending an email to kimstagliano@gmail.com)
If you don't win, you can order a copy at a 30% discount by clicking, HERE, select "add to cart" and use discount code 3B. You can also order the book at Amazon. Visit Dan's website at SavingBenBook. Here's a letter from the author.
Hi Age of Autism Reader,
I’d like to tell you about my book, Saving Ben: A Father’s Story of Autism. People Magazine called it “A wonderful read that will make parents look at their own children, disabled or not—and find so much to cherish” (Sept 14, 2009).
Other reviewers had this to say:
Dan E. Burns, Ph.D.