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Here's a "slam dunk" proposition. Spend $7 measley bucks, buy a malaria net and save a life. Click HERE to learn about the "Nets Save Lives" program.
I just read this book by Kelly McMasters - perfect timing for Earth Day..... It's a memoir about life on Long Island, in a town called Shirley - located far too close to the Brookhaven Nuclear facility to avoid illness and death and yet too far from the money of Montauk to matter to the powers that be (although they are next door neighbors.) Distance is often measure in social class and money, not miles. From Kirkus Reviews:
"Powerful...debut explores the author's happy childhood next to a controversial nuclear laboratory that leaked toxic waste into a Long Island aquifer. McMasters follows up this moving material with pages that delve into case-study numbers and scientific quotes ... Sincere and expertly researched."
As I've learned from my pal John Robison's book, Look Me in the Eye, the best non-fiction reads like fiction. This book was a terrific read. Engaging, informative and with a good story at its core. I'm sure Kelly and the people of Shirley, Long Island, New York, wish this book was fiction.
The story traces Kelly's nomad-like childhood with a golf pro Dad, who found the 18th hole in Shirley, New York, where Kelly ultimately grew up. Although Shirley was supposed to be a town of flowers according to its founder, it turns out to be anything but floral when the nuclear facility nearby wreaks havoc on old, young and in between.
I see a lot of similarities to our struggles in the autism world. The government and medical establishment turning a blind eye to the obvious problems growing around them and in them(literally inside the people of Shirley, as cancer ravaged so many.)
You can buy a copy HERE. Leave a comment and you're entered in the drawing for a copy! I'll post the winner later this week or over the weekend so check back!
Kelly was kind enough to answer some questions for me about her book. Here's our "interview."
When did you realize you had to tell this fascinating and frightening story?
The lab is a Superfund site, which is a researcher’s dream—literally hundreds of pages of documents available to the public. And after working on the project for three years, I was finally able to get access to do some research at the lab itself. There is a “Public Documents” room in their library (which is anything but—it was impossible to get access, and then they only allowed me 3 days there, during which I needed to show my approved badge four times to get in). The reports I found there felt like pieces of a puzzle falling into place. During that meeting I met with a representative from the lab who asked why I wanted to bring up all of these bad memories again. I explained that I was interested in telling the story from Shirley’s point of view. I was interested not just in the lab itself, but in the way the relationship between the lab and Shirley has impacted the town. She replied. “But there is no relationship between Shirley and the lab.”
At that moment, I realized how important this story as, because while the lab had the luxury to decide they did not have a relationship with the town, Shirley had no choice—their relationship permeates the drinking water aquifer, the soil, and the air. The town had a relationship whether they wanted one or not, and I think this scientific arrogance and the idea that the pollution and poisons our neighbor produces and releases into the environment are only the business of that neighbor is deadly.
How long did it take you to research and write the book?
I originally started circling the issue in a series of essays during graduate school. One of my favorite professors, Richard Locke, pulled me aside and showed me that the lab was functioning as this haunted house on a hill in each piece, and he said although I was clearly afraid of it, I had to look straight at it to understand what I was writing. He was absolutely right.
Along with my own memory, hours of written and tape-recorded interviews were supplemented with other research, including newspaper articles, scientiļ¬c studies, reports resulting from Freedom of Information Act requests, and hundreds of pages of documents culled from the (not so) public reading room at the Brookhaven National Laboratory. My imagined scenes of the town’s founder, Walter T. Shirley, were informed by history books and archives. Five years after my discussion with Richard Locke, the book emerged from the printer.
You’ve really brought the story to life – I’ve heard that the best non-fic reads like fiction. You’ve captured that. How did you do it?
Thanks so much—that was an important goal of mine. When my agent and I were first showing editors the proposal, they were pretty split down the middle: half wanted me to remove myself from the mix and tell the story in a purely journalistic fashion, and half wanted me to take out all of the science and medical information and focus strictly on the memoir. I thought it was important to keep that mix in there, and I was lucky to find an editor and a publishing house that believed in the hybrid as strongly as I did. So many scientific studies had already been done that didn’t tell the whole story, and since we were dealing with the Department of Defense I knew there would be no Erin Brokovitch moment of finding the incriminating evidence (or, if there was a moment like that, I’d have to go into hiding!). And while I do believe the genre of memoir can be incredibly powerful, I felt that there were so many facts and figures to marshal, that pure memoir ultimately wouldn’t be able to do the story justice.
I love literary nonfiction because it is able to take the best of both the nonfiction world—fact-based, real human drama—and the fiction world—plot, character, suspense, landscape—and apply both brushes to a single canvas. I believe it is the most exciting genre to work in right now. Literary nonfiction has that frontier feeling of anything-is-possible because the borders are so malleable and flexible. My next book is absolutely going to continue to push the hybrid form.
Do you think because Shirley was not as affluent as other areas that your concerns were ignored?
Absolutely. And almost every national laboratory around the country has a town like Shirley nestled up next to it—a blue-collar dumping ground. The most frustrating message I kept getting was that Shirley didn’t matter—that our people were disposable. You can imagine how painful it is to be told that your family and friends, the people you love most, are disposable and that their lives are not worth as much as the Nobel prize or results from an experiment.
More damaging, however, is the fact that after decades of being sent this message, it was internalized. The people in town really began to believe that they were disposable and that somehow this was just par for the course, or what they deserved. That’s the saddest and most damaging part, I think.
How do you manage the anger you must feel at that folks who refused to listen for so long?
Wow. That is a really difficult question to answer. I think writing this, of course, really allowed me a kind of release. To be honest, I cried through so much of the writing. And I was mostly crying over things that happened twenty years ago. It is difficult to know where to put that kind of anger because it is displaced—people are already sick or dead, and there is no way to change that. And since cancer often takes 20 years to show up, there is no way to retroactively protect my friends, family, or even myself right now.
Most of my anger is wrapped up in this powerlessness. My mother’s character in the book acts as a kind of Cassandra—she sees where things are headed and tries to warn people, but no one listens. I think anyone who deals with environmental health issues must feel this way. But it is a faceless anger, which is the worst kind—since there is no one person to take it out on, it can really engulf your world, and I’ve also seen this kind of anger turn inward and engulf the person, which helps no one. I think the most constructive thing you can do is simply to try to accomplish one thing each day. Tell one person or write one letter or learn one more thing to strengthen your case so the next letter you write might be the one that shines the light in that deep, dark basement where no one wants to look. Translate that anger into something useful.
Thank you, Kelly!
I had some kind of fun. I snuck into this show:
U2's first tour! 03/06/1981 The Paradise - Boston, Massachusetts, USATwilight, 11 O'Clock Tick Tock, I Will Follow, An Cat Dubh, Into The Heart, Another Time, Another Place, The Cry, The Electric Co. / Send In The Clowns (snippet), Things To Make And Do, Stories For Boys, Boy-Girl, Out Of Control, 11 O'Clock Tick Tock, I Will Followcomment: Second of two shows that night.
Jesus, I'm old.......Autism Yesterday, The Movie.
This is a repeat post from http://www.ageofautism.com/ of David Kirby’s review of the film Autism Yesterday, premiering tonight in more than 140 venues around the world.
BUY THE DVD AT Amazon.
By David Kirby
At a time when Big Medicine, Big Government and Big Media are trying hard to make the vaccine-autism debate go away, along comes a quiet little film like “Autism Yesterday” to throw a wrench in the establishment’s best laid plans to stifle the pesky vaccine chatter once and for all.
Anyone out there still declaring that this debate is over, that medical science has fully exonerated mercury and vaccines, and that thousands of parents who insist otherwise don’t know what they are talking about, really should watch THIS film before embarrassing themselves further.
“Autism Yesterday,” a beautifully shot film with a stirring original soundtrack of softly strumming guitars and plaintive but hopeful songs, tells the story of five West Coast families who bucked all conventional wisdom -- and began to recover their kids.
In each story, we see clear before-and-after evidence of a child’s heartbreaking descent into the silent, baffling world of autism, and then their steady, sometimes miraculous progress back towards health, happiness, communication and, yes, recovery.
In each case, the parents explain how they turned to controversial “biomedical interventions” such as wheat and dairy-free diets, or the removal of heavy metals from the body, to treat their ailing children. And the film, in elegant detail, shows us exactly how far these kids have come.
Their progress stands in glaring opposition to all those “experts” who insist that neither mercury nor vaccines could possibly have anything to do with autism, and that biomedical intervention is nothing short of dangerous snake oil, bordering on child abuse.
Many of them, in the process, have denigrated, ridiculed and dismissed parents who are treating their children anyway. Such parents, the media tell us, are overwrought and hyper-emotional, they are desperate and distraught, confused and ignorant, even greedy and litigious.
But watch “Autism Yesterday” and you see and hear a different story – something I have come to know after speaking with thousands of parents in over 30 states: These tireless advocates for children are neither crazy nor stupid. Their thoughtfulness, intelligence, compassion and determination is what strikes us most.
Instead of slamming them, we should be listening very carefully to what they have to say.
One clear message from “Autism Yesterday” is that parents often know what is going on with their kids far better than the professionals. Many doctors dismissed them when they insisted their healthy children regressed into autism. Studies have proven the doctors wrong.
Now, parents are insisting that biomedical treatments, in at least some cases, can virtually make autism go away. And once again, the moms and dads are being dismissed, even laughed at.
But all the derision, scorn and snickering in the world is, to them, irrelevant. As one mother calmly explains about treating these kids: “If you don’t fix ‘em, who will?”
(Managing Editor’s Note: You can watch the trailer for Autism Yesterday HERE. The film will be making its premier in April, stay tuned for more information.)
David Kirby (http://www.evidenceofharm.com/) has been a professional journalist for over 15 years, and has written extensively for The New York Times for the past eight years. Kirby was a contracted writer with the weekly City Section at The Times, where he covered public health, local politics, art and culture, among other subjects. Kirby has also written for a number of national magazines. He was also a foreign correspondent in Mexico and Central America from 1986-1990, where he covered the wars in El Salvador and Nicaragua, and covered politics, corruption and natural disasters in Mexico. From Latin America, he reported for UPI, the San Francisco Examiner, Newsday, The Arizona Republic, Houston Chronicle and the NBC Radio Network.
Today marks the third anniversary of the Environment of Harm list created and moderated by Lenny Schafer. We owe Lenny a huge debt of gratitude. Thank you, Lenny.
Lenny also provides the Schafer Autism Report, an online newsletter that gives you the current autism news at a glance and a calendar of events around the world. If you are not a subscriber, please go to http://www.sarnet.org/ and click through to a paid membership. Lenny's work has been invaluable to our community.
From Lenny's letter to his 2100+ members:
Hello List Members,
Monday marks the third anniversary of this Environment of Harm list.
I am sad to report that this list and the exchange of information it
provides the community is needed now more than ever, despite every
intent to put this list out of business. Yes, it was my deepest hope
three years ago that the proverbial dirty-vaccine cat and autism mouse
would be out of the bag by now and that most of our time and efforts
would be towards treatment and treatment research.
The EOHarm list now over 2100 members strong; having completed a
breathtaking near 80,000 messages to one another, whew!
This list is sponsored by the Schafer Autism Report, which has a
20,000 readership and is the source of about half of the members who
subscribe here.
In the event you never heard of it, the home page for
the Report is http://www.sarnet.org It is a daily newsletter digest
of autism news and information. It is 100% support by reader donations.
I believe that the readership of both this list, and the Report is a
large as it is, absent any internet marketing, because we are not
beholden to any advertisers, or big contributors, but by individual
readers who have come to trust what we have to say.
The agenda here is simple: we want the truth and justice for all our
children who have been damaged by vaccines, by any environmental
toxins and by all the disinformers at the CDC, pharma and others.
TODAY IS WORLD AUTISM DAY.
In 2003, Hawaii filmmakers Don and Julianne King realized something was wrong with their three-year-old son, Beau. Around age two-and-a-half, Beau started losing his ability to speak, his coordination, and was becoming disconnected from the outside world. Determined to help Beau, his parents brought him to the best doctors in the U.S. and took along a video camera to document the results. Two months later, Beau was diagnosed with Autism Spectrum Disorder (ASD).
In BEAUTIFUL SON, Don and Julianne take us on their journey through the landscape of this debilitating neurological disorder as they attempt to recover Beau from autism.
Along the way, through their research and personal interaction with various medical professionals, Don and Julianne come to believe the establishment has little to offer apart from advice of “good parenting” and behavioral therapy. Desperate to find help, they stumble upon a community of doctors and parents who are experimenting with alternative treatments and who are, they believe, successfully recovering some kids from autism.
Please contact your local PBS station to see if they have scheduled Beautiful Son into their programming. If not, ask them to! Learn more and order your copy of Beautiful Son HERE.
That's Woolsey Hall, home of the Yale Symphony Orchestra. Pretty swanky, yes? My kid has cultcha!
Gianna and Bella are going to the movies to see THIS. Starring none other than autism advocate Jim Carrey, boyfriend of the energetic Jenny McCarthy! I love the theme, "A person's a person, no matter how small." Words to live by.
Geez, my girls are lucky. Their trips are a far cry from my seventh grade class trip to THIS JOINT. And I mean joint. That's MCI (Mass. Correctional Institute) Cedar Junction. It used to be called Walpole State Prison. It's a Max security prison.
For some reason, our teacher, who was most ironically named Miss Free (I can still picture her frosted pink lipstick and white blonde rat combed hair) took us to Walpole State for a scared straight kind of day. WTF?? Well, I might have had something to do with the tiny Catholic school's fear that it's students were going to the dogs. You see, in 6th grade I sort of F'ed up on another class trip. Um, my "boyfriend" (the kid who held my ankles as I won the sit up contest) brought a flask of
on a field trip. And some of these.
Yup. In 6th grade I drank booze and puffed on a cigar during a field trip to the Whole World Celebration at the Hynes Convention Center in Boston. Sister Omygodshesdrunk caught me red handed and liquor-breathed. I got suspended for a few days. Couldn't attend the Christmas bazaar that year, where my Mom had garnered all sorts of arts and crafts and costume jewelry to sell.
I was a trying child. Signed myself up for piano lessons in 1st grade and informed my parents they needed to buy a piano. Went to a new school for 8th grade (funny, that little Catholic school shut down after my 7th grade year) and was promptly elected Class President in November. I did my own thing. Wasn't afraid of authority. Forged my own path. Took matters into my own hands. Almost always came out on top too.
Did I mention it's Autism Awareness month?