Wednesday, May 30, 2007
OK - so I woke up today (a good start, yes?) and headed into my bathroom. I clean my bathrooms every week. More often if the girls do something, something, something, icky. I had cleaned my bathroom last Thursday. Should still be fairly clean as I rarely do icky things in my bathroom - I am quite neat and tidy in my toileting habits. Don't laugh, when you have kids with autism you don't take these things lightly.
So - I'm in my bathroom, wondering (as usual) if the folks in the 55+ condos next door can hear me peeing through my window (I'm weird that way.) Let me rephrase that. I do not actually pee into or through my window. I sit on the toilet in a relaxed fashion - no need for the mall squat in your own house, right? Oh, the mall squat? My Mom taught me to never sit on a public toilet. Dirty. So I use my quadriceps and hover over the toilet in public restrooms - which I only used when forced to by Venti Starbucks coffee or a gallon of Dasani. And only to pee. I rarely if ever do anything other than pee in a public restroom. My husband says that's a girl thing. Guess what? I'm a girl. Well, now I've embarrassed myself, so onto my story.
I'm sitting this morning and I sniff sniff sniff something yucky. I look around. Bathroom looks clean. I sniff again. I scratch my... head, you dum dum. Only men scratch their naughty bits. Nothing to be seen. Plenty to smell. I washed my hands and headed downstairs to make breakfasts and lunches for the girls.
I went back into my bathroom. Sniff. Ick. I took out the Scrubbing Bubbles and sprayed the toilet, the floor around the toilet, the sink and the tub, leaving the bubble men to work their magic. Got the kids off to school. Went up to shower. Cleaned bathroom fully. I clean my shower while I shower. That way I reach everywhere. I get out. Sniff. I smell clean. My bathroom smells like ick. I am puzzled. I dress and go out.
I get a call from John Robison who says he'd like to stop in my town for lunch on his way to Random House and BEA in New York. I am right off the Merritt. John has a great memory. And he's a fantastic listener. He remembers I live right on his way to New York. We meet for lunch. We have a lovely time. I come home. I have had the Venti Starbucks and two giant Club Soda's with John. I have to use the bathroom. I go into my bathroom. Sniff. Ick. Yet I know I just cleaned it.
I sit down. I happen to glance over to my scale. My scale is a fancy glass German scale from a company my husband used to work for. The people at the company treated my husband like shit. Which is a fine coincidence, because, there, under the glass scale are two little lumps of shit. Yup. Two marbles. Two pops of poop. The ick. The smell of autism. You see, one of my darling girls sometimes has a small problem (or two) getting to the toilet on time. And if she has a problem, she fixes it by going into the bathroom and tidying up herself. Looks like two tidies got away....... Like the meatballs in that old kids' song. I think it's great she fixes her problem. I'm really proud of her progress. I'm glad I found the ick. And now I don't have to clean my bathroom again until next week.
Monday, May 28, 2007
I can't wait to meet my friend and American Title III contest winner and soon to be published author Jenny Gardiner at BEA on Saturday! www.jennygardiner.net Check out Jenny's fabulous book called "SLEEPING WITH WARD CLEAVER" at her site!
John Robison and I plan to meet on Saturday too. Geez, John, one more meeting and I think we're officially dating! Let's not tell our "mates" OK? (You'll have to read John's book, Look Me In The Eye, to get that joke.) You'd better pre-order it now before it sells out. I think a lot of trees are going down for this book! No kidding. www.johnrobison.com
Also, I'm speaking at an event in NYC on Thursday, June 7th in the Empire State Building. John is also speaking at the event. We will not be announcing our engagement. But do pencil us into your calendar! Details to follow.
Are you attending BEA? Tell me! When, where, what booth. I'll drop by.
Saturday, May 26, 2007
My Dad, Dr. Richard G. Rossi, is a WWII vet. US Navy. How about you? Got anyone you want to thank in addition to the brave men and women currently deployed around the world? About two weeks ago I met a man named George who was a WWII vet selling poppies outside the Stop & Shop. He had lost most of his fingers in the battle of Normandy. He was 93 years old, stood straight and tall and had the glint of a proud soldier in his eye when he told me his story.
Friday, May 25, 2007
Even low exposure to chemicals can harm fetuses
By Elizabeth Weise, USA TODAY
http://www.usatoday.com/news/health/2007-05-24-pregnancy_N.htm
An international group of scientists sounded a warning Thursday that exposure to even extremely low doses of some chemicals while a fetus is developing can cause major changes in its future growth, health and ability to reproduce.been linked to increased susceptibility to allergies.
The message is not a new one, but scientists have tended to quietly suggest more research was needed, rather than shouting there's a problem that needs to be dealt with."What's important is that they're saying it," said Andrea Gore,professor of pharmacology and toxicology at the University of Texas, whohas helped organize previous meetings on the topic.
"This says 'Wake up!' " said Brenda Eskenazi, a professor ofepidemiology at the University of California, Berkeley who attended theconference. "This is not about us any more, this is about futuregenerations."
Why aren't they shouting? Autism, Peanut Allergies, Asthma, Food Allergies, Infertility, ADHD, mental illness are through the roof and the scientists are "quietly suggesting" we look into it??? Some Autism Moms SCREAM it every day! Where's my Reeeecola????
###
In case you ever want to ask me why I work so hard for my girls? In case you ever question my love and devotion for my girls? In case you think I don't accept my girls for who they are? In case you think for one minute I will ever stop fighting for the best treatments for my girls? Read on my friends. My girls, like Danny Will, are locked inside their autism. I will search for the key until I take my last breath. Don't agree? Ask Danny what he wishes his family had been able to do so many years ago before we had the knowledge we have today.
Also, I'd love to know if Danny Will took a med before his surgery that opened up his ability to speak? Was it fear that brought out the words?
I remember the day that Mia said something similar. She was a toddler, said very little. No sentences. We were at the Ralph Lauren Outlet in The Laurel Mountains of PA. Mia was standing up in her stroller and I said, "MIA! SIT DOWN!" to which she responded "I CAN'T SIT DOWN!" It was the first spontaneous sentence she'd ever uttered. Mia is in there. Gianna is in there. Bella is in there. Mama's coming, girls. Hang on.
Here's the article.
Imagine not speaking for more than 50 years.By Kay QuinnHealthbeat ReporterThat was the case for Danny Will, a local man with autism. Will will turn 60 in August and hadn't spoken for nearly 55 years.Will functioned normally during his first few years of life. Around the age of five he was diagnosed with autism. His father died when he was seven. By the time he was 13 and his mother had to institutionalize him atFulton State Hospital. "He didn't speak the entire time he was in that institution," saidMary Vanderklok, a training specialist at the Judevine Center forAutism.In 1993, at the age of 43, Will came to live at Calverton House, a home for people with autism run by the Judevine Center.
Like many people with autism, he works and does chores, but also gestures andengages in repetitive behavior."Receptively, he understands directives," said Vanderklok. "He understands what you're saying to him, what's expected of him but a deficit for most people with autism spectrum disorder is that expressive language.
"In all of his time at Calverton House, Will still wouldn't speak --until last summer. He was taken to a local hospital for a test on his heart and he spoke his first words in more than 50 years." And that was, 'I don't want that -- get away,' which was amazing,"said Vanderklok.Will still only speaks occasionally and only to those caregivers heknows well.
"That's a remarkable man. There's just no other way to put it," saysDeVona Miner, a caregiver at Calverton House.In spite of his silence, those who know him said Will is happy. Theyalso said he is living proof that we should all keep highexpectations for people with autism."We really didn't think Danny would ever speak. He surprised us in that, so I think our motto is never give up," said Vanderklok.
Wednesday, May 23, 2007

There's talk of a new pill that will allow women to "turn off" their period. It's a pill made from hormones that you take every day, no break. No break? No annoying period.
Remember oh, about twenty years ago when docs started telling women they'd figured out how to hit the "pause" button on menopause? "Shucks, we'll just turn it off with hormone replacement!" Then about three years ago, the studies said "Oops! Maybe that wasn't such a good idea." and the very same docs back pedalled faster than Dick Cheney getting caught at a Greenpeace rally.
Have we become a society obsessed with convenience and dedicated to avoiding anything unpleasant, at least in the short term, with no regard to long term ramifications? Would you men trust Toyota if they said, "Trust us! You never have to change the oil in the new Camry!"
Oh, I can see turning off your period for convenience in many instances. Your wedding day. (That's the serious one, yes?) Or, you're skating in the Olympics and don't think your lumpy pad will razzle dazzle the judges. Maybe the boys at The Bada Bing got a glimpse of your tampon string peeking out of your G-string and you feel embarrassed? Perhaps you want to go for a swim and haven't figured out how to use a tampon..... I'm teasing, here. You get that, right?
I really do realize there are times when you might want to not have your period. But for years at a time? Don't we need the monthly blood loss? Don't our watoozies (see previous post comment trail on the definition of a douche) need the monthly flush?
I have three girls with special needs. One of whom has crossed into puberty. With two to follow. Believe me, I'd LOVE to get rid of her period. It's messy, a lot of work for the week for me, for her Dad (who has learned how to change a pad like a pro, bless his heart) and her teachers who care for her at school. But at what cost to her longterm health? I couldn't do it to her.
Remember that old Imperial Margarine commercial, "It's not NICE to fool with mother nature!" Duck! There's a lightning bolt coming.
Tuesday, May 22, 2007
Friday, May 18, 2007
Tuesday, May 15, 2007
How's this for a fundraiser premise? "Let's inject a known poison into our faces so we look 37 instead of 42 (yeah, cuz that'll atttract that hottie mechanic at the Hummer dealership where you get "Big Hummin' Hank" serviced.) under the guise of raising money for a national epidemic that may be caused by injecting a known poison into babies."
Someone hold me up under my arms! I am falling down laughing! Put on your best Manolos! Grab your favorite Lily dress! "Why, yes! I am a philanthropist! I am raising money for autism! Look, my forehead is SO smooth you can know longer see the terror, worry and concern I feel every day for my girls! Success!"
Gosh, maybe next month I can get breast implants to raise money for breast cancer! Or a tummy tuck for colon cancer! Sweet Jesus, I'm going to look great and sleep well at night too knowing I've done my part for society. Assuming the doc can write me a scrip for Ambien..... Wait! Ambien? Lunesta! We can raise money for narcolepsy too! Oh, the possibilities! There's just one wrinkle......
Here's the article from Flint Michigan. Don't they have car companies to save out there in the Motor City???
GRAND BLANC TOWNSHIP
THE FLINT JOURNAL FIRST EDITIONMonday, May 14, 2007
By Shantell M. Kirkendollskirkendoll@flintjournal.com • 810.766.6366
QUICK TAKE
Smooth for summer
An annual Botox Benefit begins at 9 a.m. Saturday at Silverton Skin Institute, 8245 N. Holly Road, Grand Blanc Township. The cost for the injected wrinkle smoother is $275, about a 40 percent discount. Appointments: (810) 606-7500.
GRAND BLANC TWP. - It's been five years, $60,000 and some progress since Dr. Kimball Silverton and his wife, Jennifer, began an unusual benefit to help autistic children like their son, Aidan, 9.
Silverton's annual Botox Benefit is Saturday, and using the popular wrinkle eraser donated by Allergan, manufacturers of Botox, he's helping smooth the way for research and a cure for a little-known genetic disorder.
"Beauty does not have to be selfish," Silverton said of the benefit.
Proceeds go to three organizations helping families and researching Fragile X Syndrome, which son Aidan was diagnosed with at age 2 1/2.
Aidan's diagnosis led the Silvertons to become advocates for research of Fragile X, a genetic disorder that's the only known cause of autism.
Interest in autism - how to recognize it early and what treatments are available - has skyrocketed, as have numbers of children diagnosed with it.
New federal studies show one in 150 children is autistic. But Aidan, a second-grader, is among those for whom doctors can at least pinpoint a reason it developed, even if there's no cure.
"Knowing the cause of his autism puts us in the direction of diagnosis and a cure," said Jennifer Levine Silverton.
Researchers funded by one of the organizations the Silvertons support - Fragile X Research Foundation, or FRAXA - have gained federal approval to accelerate testing of drug that can reverse the impaired cognition, anxiety and autistic behaviors of those with Fragile X.
"Although it's not a cure, it is a treatment for the cognitive impairment and may help children learn in more normal ways," said Kimball Silverton, a board-certified dermatologist.
Fragile X results from lack of a protein, and as a result of the deficiency brain cells don't communicate properly.
FRAXA has put its hope in a drug called Fenobam to block the signaling errors in Fragile X brains, a mechanism underlying other autistic disorders.
"We are very hopeful that this drug could get normal brain development back on track in people with Fragile X - and possibly autism as well," Dr. Michael Tranfaglia, co-founder of FRAXA, said when testing was approved in February.
Jennifer Silverton advocates newborn screening and more awareness among women to determine if they carry the Fragile X gene. The gene can be passed to their children, usually boys.
The Silvertons' daughter, Camryn, 7, does not have Fragile X.
Researchers are making progress, and so is Aidan.
* By the way, I understand that Botox may show promise as a treatment for certain debilitating diseases. I have no problem with the use of Botox. I just get a real guffaw out of the whole "If I look 5 years younger I will be a happier person" drama of cosmetic surgery. It's so shallow compared to the life we autism Moms live. Don't like my opinion? (Shrug.)
Saturday, May 12, 2007
It's a beautiful Saturday afternoon in Connecticut. I have a beer in my hand. My kids are happily playing. Mark is on the deck with a better quality beer than the light dreck I am drinking. And a song just came on Sirius satellite radio that launched me back many years.
In 1988, I worked in sales promotions. I had a number of clients in the record industry. I created promotional item campaigns to help launch new releases. So this song, that is playing on my Bose radio, was about to hit and MCA records called on me. There was nothing I couldn't dream up, source and produce. I was quite good at my job.
The song? Sylvester, You Make Me Feel Mighty Real. Usually I came up with the promo item ideas for the client. Not this time. MCA knew just what they wanted. Vibrators (the real deal, not this personal neck massager bullcrap) also known as dildos - with the logo printed on the side no less. I found the "product" (no telling you how easy THAT was) and the screen printer who could work on plastic. The hang up? Couldn't find FDA approved inks that would adhere to plastic. I kid you not. No one wanted to risk using a plastisol peepee.
Well, You Make Me Feel Might Real is over. Listen! It's Blondie's RAPTURE playing! Reminds me of drinking creamsicles in Faneuil Hall in some upstairs bar/dance club with a boyfriend and a boy friend.
Music takes me all over my life. Good times. (Like a Prayer by Madonna in the little red Jetta with Gen and Sharona in Newport.) Sad times. (How Great Thou Art at Dave Palmers funeral, a 44 year old friend who left 3 kids behind.) Love times (Love Cat by the Cure, Mark's and my wedding song.) Pissed off times. (I'm Gonna Run To You, by Bryan Adams that always made me grit my teeth over a cheating boyfriend.)
How about you - got a song that takes you somewhere??
Wednesday, May 09, 2007
Lunch with John Robison
Pinch me! Two lunches out in one week!
Today I had the great pleasure of meeting John Robison, author of Look Me In The Eye due out in September from Crown. LMITE is his memoir about his life growing up with brother Augusten Burroughs as a child with Asperger's syndrome. (Don't tell anyone - he gave me a galley copy to read!) You can find his blog at the link below.
How's this for crazy? Remember how I had lunch with Pat Wood, whose debut novel LOTTERY is also taking the publishing world by storm, like John's book? Their books are cross promoted on Amazon! Pats' blog is http://pkwood.blogspot.com/ . John's is at http://jerobison.blogspot.com/ Someday I'll learn how to do those linky things on blogger. Drop by and tell them Kim sent you.
John is 6' 4" tall and quite handsome, as you can see. Very Christopher Reeve. I'm 5' 5" on my tiptoes so I wore heels - he still dwarfs me! We talked of autism, Asperger's, publishing, aspirations, goals, ups, downs. A glorious two hours. I think the best description of him is "Renaissance man." He's worked in Rock n Roll, Is a photographer, writes, works on cars, so much!
I noticed something at lunch and I have to comment on it. In my book, I have a scene where a tip is left at a restaurant. My character says something like, "You can learn a lot about someone by how they tip. Do they take off a few pennies for service or piss and moan about not tipping on tax or do they just leave a good tip?' John left our server a VERY good tip. He's a generous spirit. I love that.
So, John is reading my book as I'm reading his. Mind you, my book is fiction, funny, has my voice and an autistic nine year old who is telepathic. What on EARTH will John think of it! LOL! I'll let you know.
Tomorrow I'll snap a photo with yet another tall, good looking man, David Kirby, author of Evidence of Harm and one of my beta readers.
Geez, I LIKE being a writer! :)
Tuesday, May 08, 2007
The Connecticut Chiropractic Association is pleased to announce that Author David Kirby will be the luncheon speaker at their annual 2007 Spring Conference on Thursday, May 10 at the Doubletree Hotel in Norwalk Connecticut.
David wrote Evidence of Harm. www.evidenceofharm.com . He was a beta reader for me and the second "real" writer (after Susan Senator, www.susansenator.com) to tell me my book was indeed sellable. Susan read the book as I wrote it and encouraged me at every step.
I don't care if the event serves rubber chicken and cold pea soup. Someone else will be putting a plate of food in front of me! I hope the gal next to me doesn't mind if I wipe her mouth for her!
Sunday, May 06, 2007
Sunday morning fun. Pot of Sunday gravy bubbling? Check. Chicken cutlets fried? Check. Batch of treats baked? Checked. Everything is gluten/casein free? Check. My parents are on their way from Massachusetts for a visit. Here's a little trick to knowing Kim. If I cook good food for you, I like you, probably love you. If I order take out? I like you but not enough to cook for you. :) Food is love, yes?
Notice that I said all the foods are GFCF. That means no wheat, no oats, no dairy in any of the food. It's a diet common in the autism world. GFCF. For my girls the diet has made a HUGE difference in behavior, GI functioning and overall health. I often meet autism parents who say "Oh, I could never do that diet. My child only eats.... the list is usually the same: chicken nuggets, grilled cheese sandwiches and cereal. And all of these are almost exclusively gluten and casein. The body seems to crave the food to which it is intolerant. Another of God's little jokes. Pull the foods (easier said than done) and suddenly the child is eating fruits and veggies and proteins and a far better overall diet.
Before I pulled dairy from Miss G. she was nutty. Ran around, screamed, had red cheeks, runny nose. Bella? Give her wheat then watch her bit her little fingers bloody and wake up several times a night screaming. Mia? Either makes her completely stoned and zoned out. I've seen it and lived it for years and I know what happens. That there's no double blind study for doctors to concur with me matters not a fig to me. Who the hell is going to pay for and conduct a study about REMOVING FOOD from the diet for health? Ain't no money to be made there. So parents take charge and do their own "study." Oh, the docs who pooh pooh the GFCF diet are the same ones likely to tell a parent to try the ketogenic diet for seizures - to alter brain functioning. But they refuse to acknowledge that GFCF can alter brain functioning. Look Alice! There's the Caterpillar smoking a hookah! (Can I have a hit?)
The GFCF diet takes work, time, home cookin' and is expensive. It's a pain in the ass, frankly, and I hate that we're on the diet. But I'd hate if my girls felt and acted like crap because of what I was feeding them even more. For us? The diet is a must.
Saturday, May 05, 2007
OK, without getting into too much detail here (my Mom visits my blog you know) I had an interesting Friday night. (Hi, Mom!) Last night my husband Mark got home from a week-long business trip. Kids went to bed by 8:15 pm. ALL THREE! You following me?
Husband pays me a lovely, lovely compliment. "Kim, you look beautiful. Really. Just beautiful." Appropriate talk between married adults, yes? I am pleased. Then he adds, "You've really upgraded yourself." Can you hear the marital bed train wheels screeeeeeching to a halt?
Now I realize he in no way meant to imply that I was skankasaurus rex in the past. He has always found me attractive. He married me for God's sake!
And if I really think about his comment, he's right! Don't sic the feminists on me!
For many years in my 30's I was having babies, learning that my babies had autism, fighting tooth and nail to figure out how to help them, living far, far from family and friends (I realize now that I am back in New England how much that really affected me) dealing with four long years of a seizure disorder in one of kids, had a husband for thought that golf was the most important thing in the world (he has since come around on that one) had the same husband who was out of work for many long months (bye bye golf), had to sell a beautiful house and most of our belongings to stay afloat, moved in with my parents like an unreal reality show, enrolled the kids in two new school districts, managing 1,2, 3 IEPS, wrote a novel, launched a private Yahoo group for parents of kids with autism, tried to earn a few bucks as a marketing consultant and managed to NOT go insane.
Did I look my prettiest during these times? Perhaps not. Did I gain 13 pounds? Yes. I ballooned up to 132 pounds - a number I hadn't seen since 4 months pregnant with any of my girls. I was a bit tired and didn't have a lot of money for personal care extravagances. And my head just didn't give a shit. I was in survival mode. And we survived!!!
Now that we are settled into our little house, the kids are in good schools, my career is moving along, I'm more involved with helping people with kids with autism and my baby making days are fini - I feel more at ease. Oh, I've lots to do still. Plenty. But he has point. I do look better because I am HAPPIER. And that Mark and I have survived and still want to talk across the pillow is nothing short of a miracle. But miracles take a lot of work. They don't just happen. Not to me, anyway.
Signed, Kim "2.0"
Thursday, May 03, 2007
I have a raging case of pink eye and must take the day off! Wednesday, May 02, 2007

Tuesday, May 01, 2007

Maryann Lombardi, of Wilton, whose son was placed in a padded room when he was 9 years old, has teamed with state Sen. Judith Freedman, of Westport, to pass the bill, which would look to ensure that schools “don’t isolate children in what we call these isolation rooms or padded rooms unnecessarily because it really is detrimental, especially to a special-needs child.”
Added Freedman: “The parent has to be contacted and the parent has to be part of the process.”
The issue of seclusion rooms has some parents with mixed feelings. Some are appalled the rooms exist in southwestern Connecticut schools. Other parents feel that, if used correctly, the rooms can be used as safe places. That includes Lombardi.
Friday, April 27, 2007

This is quite endearing to me. One of the world's largest publishers, Penguin Putnam, is featuring an autism awareness banner on their site! With savings on their autism related books. Perhaps they'd like to add a fabulously funny fiction title to their autism roster???? (Call Eric Myers at The Spieler Agency. Wink, wink, nudge, nudge!)
Putnam is also the publisher of the forthcoming LOTTERY by someone I am now proud to call a friend and mentor, Patricia Wood.
http://patriciawoodauthor.com/index.htm
I feel quite cheered. I'm going back to the Putnam site to look at that banner again.
http://us.penguingroup.com/static/html/parenting/autismfeature.html
1) Susan Senator. Sue is a writer and also the mom to a child with autism. She's also a killer belly dancer who proves the fabulosity of 40. We have relationship that crosses over many boundries imposed by, well, no one really knows who imposes them, they're just there. Sue and I say "Oh, screw that. Here. you row for a while then I'll take a turn."
http://www.susansenator.com/blog/
2) This Is What I Do. Funny lady. Has a son with autism and we share a certain pissy anger about the entire ordeal. A "wtf" sensibility.
http://tiwid.blogspot.com/
3) Manic Mom. Her sometimes scary candor and outrageous humor are tons of fun. Who else would talk about her bathroom trip at Home Depot?
http://manicmommy.blogspot.com/
4) Musings of a Louisiana Liar. How can you not love that blog title? Jana DeLeon's blog. Author, and admitted liar. Lots of good writing info there and fun too.
http://janadeleon.blogspot.com/
5) A funny Boston Irishman's blog. I am part funny Boston Irish,er,woman. My Grandmother was Anna Sullivan doncha know. I'm not all Italiano, although I embrace that part of my life because the food is way better than the Irish side and I can't get the smell of the rich, red Sicilian leather that covered our 1976 Caddy Coupe de Ville out of my nose. I do embrace the Irish love of hoisting a fine pint of black and tan, though. And I choke down soda bread once a year. I'll drink tea when my throat closes to the size of a Q-Tip stick too.
http://ghostofmintyhatton.blogspot.com/
Enjoy!
Thursday, April 26, 2007
Summary: Autism studies often yield useless info. Autism is not a straight genetic "blip" that has come about in the last 20 years.
Autism: Lots of clues, but still no answers
14 May 2005
NewScientist.com news service
Celeste Biever
THE risk of autism in twins appears to be related to the month they are born in. The chance of both babies having the disorder is 80 per cent higher for January births than December births.
This was one of the many findings presented at the conference in Boston last week. It typifies the problems with many autism studies: the numbers are too small to be definitive - this one was based on just 161 multiple-birth babies - and even if the finding does stand up, it raises many more questions than it answers. For instance, is infection during pregnancy to blame? Or another environmental factor that varies with the season? Is it the birth date that is important, or the date of conception?
While it is now clear that autism is a complicated combination of genetic and environmental factors, no one knows exactly what these environmental effects are and which genes they might be interacting with to cause autism. "We clearly have a daunting task ahead of us," Craig Newschaffer of the Johns Hopkins School of Public Health in Baltimore, Maryland, and a member of the birth-date study team, told the conference. "We have had slower-than-hoped for progress finding autism genes, and now we see an increased focus on the environment in autism."
Based on twin studies, the consensus is that, depending on how you define autism, between 60 and 90 per cent of cases are genetic in origin. And although progress has been slow, geneticists are homing in on some of the genes involved.
Eric Geschwind of the University of California, Los Angeles, announced that he has linked a region on chromosome 17 to autism, confirming earlier studies. Other recent studies have linked mutations in specific genes to some cases of autism, including two genes that code for brain proteins called neuroligins, which are involved in the transmission of nerve impulses. Further emphasising the genetic basis of the disease, Geschwind has also found that although people with autism have larger heads than the population in general, on average their heads are no larger than those of siblings and parents without the disorder.
“What if you have an infant with some genetic susceptibility to autism and then you add a toxin? It looks very disturbing”
One of the reasons progress has been slow is that many genes appear to be involved. Some people with autism have mutations in one gene or set of genes, and others have mutations in different ones. That makes it hard to carry out the statistical studies needed to pinpoint the genes involved. Geschwind thinks that the best way forward is to first identify smaller, measurable components of the disorder, and then to look for the genetic underpinnings of each one.
But it is not just about genes. "The genetics is very compelling and explains most of the risk, but there is room for the environment since genetics cannot explain it all," Geschwind says.
“The genetics explains most of the risk, but there is room for the environment since genetics cannot explain it all.”
Identifying which genes and which environmental factors are interacting presents enormous challenges, says Ellen Silbergeld, an epidemiologist at the Johns Hopkins School of Public Health. "One real problem is we don't have a good idea of the disease's history," she says. She points out that our understanding of heart disease was greatly helped by the Framingham Heart Study, which followed around 5000 individuals for up to 50 years.
Autism not only lacks a similar study, but also presents more challenges, because fewer people develop autism than heart disease, and because it might be not one but multiple disorders with related sets of symptoms. "Are we talking about 10 different diseases?" Silbergeld asks.
Complicating the story still further is the apparent rise in autism. The Autism Society of America estimates that there was an increase of 172 per cent in the US in the 1990s, though the population grew only 13 per cent. It is still not clear if the rise is due to some new, presumably environmental, factor or if doctors are simply becoming better at diagnosing the disorder. But that has not held people back. "We are going through a frenzied period," says David Amaral at the University of California, Davis. "People speculate wildly about the things that could cause autism."
Some have focused on exposure to viruses or vaccines, others on pollutants such as mercury. Emitted by factories and power stations, some forms of mercury build up in animals such as fish and enter the food chain. In 2003, a small study by paediatrician Amy Holmes found much lower levels of mercury than normal in the hair of children with autism (New Scientist, 21 June 2003, page 4). Her hotly contested theory is that they have an impaired ability to excrete mercury.
In Boston, Jim Adams, a chemical engineer at Arizona State University in Tempe who has an autistic daughter and believes that mercury causes many cases of autism, presented results supporting Holmes's theory. He found that children with autism have up to three times as much mercury as normal in their baby teeth, yet lower levels in their hair.
And in December last year, Jill James of the University of Arkansas published a study showing that people with autism have lowered levels of glutathione, a compound that detoxifies mercury. But as so often with autism, far more studies are needed before any conclusions can be drawn.
Others are looking at polychlorinated biphenyls, or PCBs. Banned in most countries since the 1970s, PCBs still persist in the environment and in animals and people. A team led by Tal Kenet of the University of California, San Francisco, found that one type of PCB can devastate the auditory cortex in rats, the brain area that processes sound signals according to frequency.
Some people with autism have abnormal auditory cortices and difficulty communicating verbally, despite having perfect hearing on regular hearing tests. Kenet speculates that this could be linked to exposure to PCBs or other toxic substances. Although it is far too early to confirm the link with autism, no one had ever looked at this before. "What if you have an infant with some genetic susceptibility to autism and then you add a toxin? In all it looks very disturbing," she says.
There could be a whole host of chemicals that wreak havoc on the brains of genetically susceptible individuals, team member Isaac Pessah of the University of California, Davis, told the meeting. He points out that according to the US National Toxicology Report, between 60 and 80 per cent of the chemicals we are exposed to through pesticides, cosmetics and foods have not undergone adequate risk assessment.
From issue 2499 of New Scientist magazine, 14 May 2005, page 14
This story/obituary just hit me.
"Wayne Schenk, who fought unsuccessfully to get a $1,000,000 New York State Lottery prize paid in a lump sum so he could use it to treat his cancer, died here on Monday. He was 51."
The $5 scratch off ticket paid $1,000,000 over twenty years. Mr. Schenk lobbied the New York State Lottery commission to pay out the entire sum to him so that he could pay for cancer treatments. He learned he had cancer 5 weeks before he won the lottery. The NY Lottery declined to change the rules of the ticket. Mr. Schenk received his first $50,000 installment before his death.
1) Could he have sold his ticket annuity to one of those companies that advertises on the radio that makes lump sum pay outs for a fee? 2) Could the NY Lottery commission have changed the pay out rules for this case? 3) If you die, do your Lottery winnings CEASE or do they go to your survivors?
Tuesday, April 24, 2007
CONTEST: Name this dude. Leave your suggestions in the comments. Prize? The glory of a win. My choice? Ivgotta Nodicki.
"HORRIFIED diners watched in shock as a maniac sliced off his manhood in a crowded pizza restaurant.The 35-year-old Pole burst into the Zizzi eaterie in central London and grabbed a knife from the kitchen.He then leapt on a table and dropped his trousers as customers fled screaming.A witness said: “There was blood everywhere. Everyone ran out of the place.”Surgeons battling to save the severed willy tried to sew it back on in the first UK op of its kind. "
So, what now he's a poleless Pole? A Pole with a hole? Not quite sure.
Need to read the entire story?
http://www.thesun.co.uk/article/0,,2-2007180857,00.html
My dear friend Gen is going to the Arbonne International annual event in Las Vegas. Arbonne is a MLM company offering high end skin care, make up etc. Think Mary Kay without the big hair and pink Cadillac*. Arbonne offers a White Mercedes as their incentive car. How nice is that!
Gen is my age and has two young kids (not autistic.) I know how much I'd love a trip away by myself for several days. So I called her this morning at 8:30am to wish her a safe and fun trip. I knew she was leaving on Monday.
Today is Monday, right? Um, no. Today is TUESDAY. She's already in Las Vegas. Did I mention we live on the EAST COAST? So I managed to wake my best friend at 5:30am, put the fear of God into her (I'm sure) by an early morning call and then ask her "Why are you whispering?" when she answered. What a maroon I am!
Sorry Gen. Go back to sleep.
* By the way, have you SEEN the new Mary Kay pink Cadillacs?? They are this very cool iridescent pinky/lavender/white color. We have one in town and I always wave and smile to the woman driving it. It's takes a lot of work, drive, dedication and success to get that car.
:)
Friday, April 20, 2007


Thursday, April 19, 2007
Spring break, 2007, day 4. STILL NO SUN!!!! No, I'm not in Mexico. Nor Florida. I'm in stinking Connecticut, land of the gloomiest spring ever to torment the United States of America.
I lived in CLEVELAND FREAKING OHIO for ten years and never saw a spring this nasty. Cleveland is God's homage to the color gray. Lake Erie ensures that old Sol makes nothing more than a guest appearance every so often to keep NE Ohioans from going insane.
Now Connecticut, in my beloved New England, the land I pined for during 14 long years of separation has turned on me. We haven't seen ONE crocus. Not a hint of a daffodil. Nothing. Rain. Cold. Wind. That's it.
Spring break. Indeed.
Sunday, April 15, 2007
I read a very fun book on Friday night. Yes, the entire book. It's called "Because She Can" by Bridie Clark. It's about a young woman in the publishing industry who goes to work for the Queen Shrew of the business. Sort of like The Devil Wears Prada meets the book business.
The book itself was a fun, engaging read. But it was the very last page that got me. Ms. Clark thanks a long list of folks at the end of the book. Not only did I recognize the name of her agent, my eyeballs grew larger than their already Marty Feldman size when I read the name of her editor. I know this editor by name. I haven't met her though.
This is a first. I've been reading books and acknowledgements for quite a few years. "Blah blah blah, thanks to the inventor of Garamond, couldn't have written this book without my herbalist and my thirty seven cats, etc."
Now that my book is "out there" I am paying attention to editors and imprints and such. And the editor who bought "Because She Can" is reading my book. What emotion did that stir? Think of the thrill of a first kiss combined with the upward launch of your guts on a giant rollercoaster hill. The big one that lifts you out of your seat and scares you out of your pants and comes darn close to emptying out your bladder. Cold sweat meets high hopes. This woman bought the book that was in my hands. And she will be reading my book.
Aye yi yi.
Well, off to look at the NorEaster pounding outside. We're not far from the coast and the lashing is impressive in a "hope we stay dry" kind of way. Spring break looms. Tomorrow we brave the weather for a drive to Massachusetts to GrandE and Granpa's house. Good food, four extra hands and two giant hearts to help with the girls. And I get a night out with friends on Tuesday.
Why? BECAUSE I CAN! ;)
Friday, April 13, 2007
Thursday, April 12, 2007
Wednesday, April 11, 2007
OK. Two news bits have caught my eye. The three young men caught in the Duke Lacrosse Scandal have had their charges dropped. Case closed. I assume that they'll be able to get their lives back on track in some fashion. Not sure about the accuser. I hope she can too. It will be interesting to see if they bring charges against their accuser or the former prosecutor.
That case attracted my attention because I have a soft spot in my heart for lacrosse players. Decent ones, mind you. Not ones who would treat women like dirt. I suppose someone will write a book about it. Please, don't query my agent, OK?
The lacrosse players I knew where good guys. Protective guys. I dated an All American midfielder from Baltimore, prime lacrosse breeding ground, for many years. He was recruited to an Ivy League school. A broken ankle waylaid him though. Insert crude joke here. Mr. Midi is still a good friend many years later. I love that.
My cousin's son starts for Yale lacrosse and his younger brother will be playing for Yale next year as a freshman. Her sister's son plays for Colorado. These kids are real live people - not just "rich white boys." Just as the women who entertained the Duke boys were real live people - not just "entertainment." It's a tragic, sordid story all around. No winners. No winner.
And now I read that MSNBC has dropped Don Imus' program. Imus said an incredibly stupid, hurtful thing about young women who should have been able to concentrate on their success, not their hair or skin color. I guess he's been watching MTV and BET and listening to the radio and picked up some foul language.
But Don Imus has also been a true supporter of the autism community. I do wonder if he's been shit canned for a reason somewhat unrelated to his verbal gaffe. I do indeed. You'd be surprised at what goes on in our little world. Gotta dodge, gotta roll, gotta win.
Tuesday, April 10, 2007
Yesterday I had a great day in NY.
Today? I am H-O-M-E!
Oh, cleaning is easier
when you can dance around the house
listening to your new Sirius radio to replace
the one that pooped out last week. Dusting
to Depeche Mode is decidedly less dreary than
simply humming the old Pledge song about
the Lemon Tree.
Yes, the glamorous life of the writer/autism
Mom never ends.
Monday, April 09, 2007
This is quite possibly the most pretentious sentence ever to come out of my mouth, er, fingers. "I had coffee with my agent in NY today."
Coffee with the agent formerly known as "Super Agent X", now known as Eric Myers was divine. I am comfortable with him. I respect him. I like him. He is a delight. It's a great feeling to know my book is in such capable hands.
File that under "H" for happy.
Sunday, April 08, 2007

Saturday, April 07, 2007

Friday, April 06, 2007

Writer's Digest, October 1976
LOOK! Mommy Can Write!
I found this magazine in an antique store in Plainville, Mass last year. Isn't it great? I am fortunate to have a sleek glass desk and a computer instead of an ironing board.
Ironing boards make me break out in a cold sweat. Why? Not because I have an aversion to ironing. I like ironing! It's just that a few years back, my husband worked for a German company that makes ironing boards and I was drafting to demo the product on QVC. Yes, I played Carol Merrill at 7:03 am deftly showing off the marvelous attributes of an ironing board. You'll note that 1976 Mommy uses Easy-On. I am a Niagara spray starch girl. As was my Mother.


Daddy's All Right!
How's that for a guilt trip? This is only 31 years ago folks. My husband has supported my writing from day one. And signing with an agent made the process seem that much more realistic to him. He's really excited for me and I love that.
This magazine reminds me of the old Enjoli perfume ad. "I can bring home the bacon! Fry it up in a pan. And never let you forget you're a man! 'Cause I'm a woman! And I wear Enjoli."
I usually wear whatever my kids smear on me. If you have a nut allergy don't get too close.
Thursday, April 05, 2007
National Autism Association Board
I am delighted to see Ms. Wright Hildebrand lending her considerable talents and passion to NAA.
NAA is putting dollars into the hands of needy families and funding research with immediately actionable results for our kids.
I'll look forward to seeing Katie and Becky at the NAA conference in Atlanta in November. I am on the conference committee.
You can read the entire press release here:
www.nationalautismassociation.org
Wednesday, April 04, 2007
I can't get a signal on my Sirius satellite radio! I can listen on my computer - but the receiver that I use in the kitchen and the car might be broken. It is only picking up the signal sporadically. I haven't listened to FM radio in over a year. I am reminded WHY I dropped testicular radio (as its called on Howard Stern) every time I hear a cheesy car dealership commercial or a request for pledges or Dust in the Wind. Sirius, COME BACK! I think I need a new receiver. Mark gets home tonight from the West Coast. I'm putting him on the job.
Tuesday, April 03, 2007
OK, so according to this article, adults are passing whooping cough (Pertussis) onto babies. Therefore, adults need a whooping cough booster vaccine. But aren't the babies already vaccinated against whooping cough courtesy of the DTaP vaccine which is on the AAP vaccine schedule at 2 months, with another dose at 4 months and yet another at 6 months? So the answer is, if the vacccine is not working in the babies, lets give more to the adults?
Cases of whooping cough are on the rise, according to a new study, and researchers say parents may be giving their children the disease. (Maybe the vaccine isn't working??)
A new study finds parents are the source of a child's whooping cough in 55 percent of infants.
In all, household members are responsible for 75 percent of cases among babies.
A panel that advises the Centers for Disease Control and Prevention now recommends vaccination for all older people if they have contact with infants.
The study appears in the Pediatric Infectious Disease Journal.
http://www.nytimes.com/2007/04/03/science/earth/03water.html?_r=2&oref=slogin&oref=slogin
Don't you love that phrase? I saw it this morning in the New York Times article about the levels of drugs in our water. Drugs like antibiotics and birth control pills. Drugs we pee out into toilets and then flush into public water treatment plants. Drugs we flush down toilets as DEA pounds on our... Oh, wait, no, that was an episode of WEEDS. Drugs we flush down the toilet when they expire or when great grandma expires and you no longer need the 24 bottles of pills she was taking. (I heard she died of natural causes but I have my doubts.)
OK - so the article says some states are taking precautions although there is -- Say it with me! -- NO EVIDENCE OF HARM. The good news is you may be able to clear up that yucky clumpy stuff growing out of your skoodlydoodly and prevent pregnancy simply by turning on the tap. The bad news is we really have no idea the long term effect of the small amounts of these chemicals in our water on children especially.
FDA suggests you read the literature with your drugs to find out how to dispose of them. Hello? People can't be bothered to recycle tin cans - they're going to save their little flyer with their meds and refer to it before they toss the meds they didn't bother to take in the first place? And then take the meds to safe disposal centers? Sure - just drop them off along with the new mercury light bulbs that require special disposal processing too.
Oh, and if the term EVIDENCE OF HARM sounds familiar? It should That's the title of David Kirby's book from 2005 that examines the mercury and vaccine controversy. www.evidenceofharm.com You see, the experts say "There is no evidence of harm" from mercury in vaccines. It's not quite the same as saying "Mercury in vaccines is safe." It's more like a Jack Ass stunt. "I wonder if jumping out of a ninth story window smeared in Vaseline onto a field of cacti will cause injury." Some things should be left to common sense, eh?
We have no evidence that landing on the moon and ripping of your helmet will kill you. Care to try it? Let's call that crazy Astronaut lady.
Monday, April 02, 2007
So there was a Lexus SUV across the street for over an hour today. With a woman just sitting in the car. Didn't seem like she was casing the street for robberies. It was a dumb place to park - we live on a busy street just after the crest of a hill. Lo and behold, up pulls another SUV. Drug deal!? No. The dingbat ran out of gas. It was probably her husband holding the little red gas can.
Sunday, April 01, 2007
For Christians, today is Palm Sunday. A somber day when we remember the impending crucifixion of Jesus on Good Friday. For pranksters, today is April Fools day.
That could explain the 200 pound, dark chocolate Jesus exhibit that is raising eyebrows and fists all over the place.
http://gawker.com/news/funny-headlines/rewriting-the-daily-news-chocolate-jesus-248406.php
Note: The Gawker article on the Sweet Jesus art is definitely snarky and the comment trail, while very funny, is sure to offend some people. Frankly, I thought one commenter asking if we'd celebrate the "Pezurrection" was brilliant, in a "going straight to hell" sort of way. Is it getting hot in here?

